My solution

I suffered from increasing frequency, and intensity of RLS for about 40 years until it got so bad that I had to do something about it.

I worked out that as it was worst in the evenings and disappeared overnight, that it may be food related. After much head scratching and experimentation, I pinned it down to E202 food preservative. It's used in almost every margarine and many dip, sauces and ready meals.

I now only suffer when I'm really tired, and can tell that I've had some within half an hour of eating it.

Problem solved - except for eating out. I avoid any sauces that may be ready made.

It would be interesting to see if this works for anyone else.

4 Replies

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  • You are so fortunate to have located the specific cause of your rls.

    Many people have multiple causes/ triggers- which makes it extremely difficult, if not impossible to get at the root cause.

    We are extremely fortunate in the EU , to have good food labelling legislation ( I had extreme difficulty in NZ in finding out what was actually in certain foods in the supermarket )

    I enclose a comprehensive list of food additives often associated with rls for some individuals.

    The ones that I find most extraordinary are colourings in common medicines - utterly unnecessary and actually harmful- how on earth is this allowed.???

    Some Causes of Food Intolerence :

    • Artificial colours: (food dyes, artificial colors) tartrazine 102 (E102, FD&C Yellow No.5), quinoline yellow 104 (E104), sunset yellow 110 (E110, FD&C Yellow No.6), azorubine, carmoisine 122 (E122), amaranth 123 (E123), ponceau, brilliant scarlet 124 (E124), erythrosine 127 (E127, FD&C Red No.3), allura red 129 (E129, FD&C Red No.40), indigotine, indigo carmine 132 (E132, FD&C Blue No.2), brilliant blue 133 (E133, FD&C Blue No.1), green S, food green, acid brilliant green 142 (E142), fast green FCF 143 (E143, FD&C Green No.3), brilliant black 151 (E151), brown, chocolate brown 155 (E155) (colors)

    • Annatto (annatto extracts, bixin, norbixin, 160b, E160b)

    • Sorbates: (sorbic acid 200, E200, sodium sorbate 201, E201, potassium sorbate 202, E202, calcium sorbate 203, E203)

    • Benzoates, hydroxybenzoates, parabens: (including benzoic acid 210, E210, sodium benzoate 211, E211, potassium benzoate 212, E212, calcium benzoate 213, E213, ethyl para-hydroxybenzoate 214, E214, sodium ethyl para-hydroxybenzoate 215, E215, propylparaben 216, E216, propyl 4 hydroxybenzoate 217, E217, methylparaben 218, E218)

    • Sulfites, bisulfites, metabisulfites: (200-228, sulphites, sulphur dioxide, sulfur dioxide 220, E220, sodium sulphite 221, E221, sodium bisulphite 222, E222, sodium metabisulphite 223, E223, potassium metabisulphite 224, E224, potassium sulphite 225, E225, calcium sulphite 226, E226, calcium bisulfite 227, E227, potassium bisulphite 228, E228)

    • Nitrates & nitrites: (249-252, potassium nitrite 249, E249, sodium nitrite 250, E250, sodium nitrate 251, E251, potassium nitrate 252, E252

    • Propionates: (bread preservative, mould inhibitor 280-283: propionic acid 280, E280, sodium propionate 281, E281, calcium propionate 282, E282, potassium propionate 283, E283, ‘natural’ preservatives in bread, cultured wheat, cultured dextrose, cultured whey) Synthetic antioxidants: Gallates 310, 311, 312 (E310, E311, E312), tBHQ 319, E319, BHA 320, E320, BHT 321, E321(flavor enhancers) glutamic acid and all glutamates, MSG monosodium glutamate 620-625, yeast extract, hydrolysed vegetable protein HVP, disodium guanylate 627 (E627, DSG, GMP), disodium inosinate 631 (E631, DSI, IMP), ribonucleotides 635 (E635, I&G, nucleotides)

    • Flavours: (flavors)

    • Salicylates: salicylic acid, sodium salicylate, acetylsalicylic acid

    • Biogenic amines: vasoactive amines (tyramine, phenylethylamine, histamine and others) Glutamates: Natural foods:

    • Dairy: milk, yoghurt, cheese, butter, lactose-free milks

    • Wheat or Gluten: (wheat, rye, barley, oats)

    • Soy: Sugar free sweeteners

    Sugar free sweeteners: polyols,

    Happy hunting!😎

  • Wowza. Very comprehensive and useful list. Off to check my meds for the food colourings- I agree that it shouldn't be allowed in meds.

  • I try to avoid artificial food additives as much as I can, as, although I can't pin blame for any specific problem, It's possible that they're having subliminal long term effects. I agree with you on colourings in meds. It seems ludicrous to me that ADHD drugs contain things which are known to cause hyperactivity in some kids.

    I know that I have a1 casein intolerance, so stick to a2 or goats milk.

  • Yeah- colourings are allowed in US- which are banned in Europe. MnMs etc apparently.

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