Hi: Hi just signed up, had RLS for... - Restless Legs Syn...

Restless Legs Syndrome

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Shelag profile image
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Hi just signed up, had RLS for quite a few years, just coming off Ropinirole as I have rebound and augumention plus nausea and will start Gabapentin in s few days.

What's others experience of meds?

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Shelag profile image
Shelag
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4 Replies
Hoffie profile image
Hoffie

I have taken miraplex and gabapentin with little success. I recently switched to ropinirole and now have face and hand tremors so I will be going through withdrawals from that as well. I have found the only thing that works on my RLS is marijuana or oxycodone both of which are highly addictive. It's a no win situation.

Joolsg profile image
Joolsg

Hi Shelag,

I went through rebound /augmentation and withdrawal from ropinirole in 2016 and started on gabapentin. It took 3/4 weeks to take effect and worked well for 5 months giving me some respite from the jumpy legs.

Sadly, it seems to have stopped working for me so I am looking at next steps. It carries on working longer for others, so it may be brilliant for you. Don't take magnesium within 3 hours of the gaba as it reduces the effect.

Take care,

jools

John_naylor profile image
John_naylor

After GABA stopped working I used DA's until they stopped working. Got thro' a couple of years with some peace and some side effects but now settled on Tramadol. Apart from tendency to fall asleep when I relax am quite good. Good luck.

SLMCP profile image
SLMCP

HI there and welcome! My list of meds is too long to list on here (!) but currently I am on Pramipexole and codeine and they are working pretty well. Am enjoying some good nights sleep after many many years of exhaustion, stress etc. I know the RLS is still with me, I get it at odd times during the day, but at least I am sleeping.... hope you find something new that will help you.

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