Two Questions to Ponder.. : When you... - Restless Legs Syn...

Restless Legs Syndrome

21,385 members15,047 posts

Two Questions to Ponder..

12 Replies

When you visit with your doctor about RLS do you wait for him/her

to suggest a medicine or do you ask for a specific rls medicine, and

or pain pills, muscle relaxers? How does the doctor react?

How does your family (those who live with you) take it when you are

up dealing with RLS at night? Did it change your relationships with

your family?

Read more about...
12 Replies
Kaarina profile image
KaarinaAdministrator

I am one of the lucky ones in that my RLS has not gotten worse with age and has actually disappeared from time to time and I have not suffered for a long time now. I have never had the need for meds for RLS. When I go to the GP about other symptoms I read up about it and I would suggest medications if I felt one would help and my GP does not come up with it. Not in a demanding way but at the same time enlightening him about things that I have learned from forums or the net in case he is not aware. Often I find GPs are not aware. It is good if one can work with one's GP as a team. I find anyway.

When I was suffering in the evenings and night, nothing changed in the relationships with my husband or children. They were aware though, as often I could not sit and watch a film or TV programme. First I would start to fidget, move to different parts of the room or lie on the floor and eventually walk out of the room. Night times, me walking around the house never really disturbed anyone. They knew I was often in discomfort on long car journeys too, especially my husband.

Bella5 profile image
Bella5 in reply to Kaarina

My GP and I also work as a team in terms of medication.

I'm not sure what's going on but my RLS is getting worse and the med doesn't seem to work as well as it did. When I got the leg pain the med would eventually help. Is RLS supposed to get worse with age? If so, I guess that's what happening to me.

During the last 2 weeks no matter how many pills I take, the pain doesn't subside. Or, it goes away and starts up on the other leg. I am very discouraged since I feel that I don't have a life. My entire being is controlled by this RLS. It's been 8 years now - however it has become worse these last few years.

God Bless us all!!!

Jenny

in reply to Bella5

Maybe it's time for you to pick another treatment?

Have you considered taking any other drugs? I'm

interesting in knowing what drugs you did try..

I love hearing people's stories.

I live with my cousin, and we both have RLS, so its not a problem for us, not any more.

in reply to

At least you have someone to do jumping jacks with or

have a midnight snack with. It does really get lonely when

it's just you and the radio playing soft music...

in reply to

Yikes, we usually end up argueing over the computer :)

bvlgari profile image
bvlgari

I am very lucky my family are very understanding and used to me fidgeting and walking around the lounge whilst everyone else is watching tv. Luckily they are all good sleepers I never wake them. My husband had Rls for a month whilst he had a thyroid problem and although I would not wish this on anyone he had a taste of what my life is like and it drove him nuts!

Bella5 profile image
Bella5 in reply to bvlgari

Am happy for your husband - however, I didn't know that RLS can be the result of a thyroid problem. I will mention it to my GP next time I see him.

Jenny

in reply to Bella5

We are all learning things at the same time. I read that

same thing that bvgari just said in a magazine. I also

found out that antacids will block out the iron that some

of us take. I also found out that fatty foods taken with

a narcotic gives the painkilling an extra punch.. I am

reading up in a woman's health magazine for this information.

in reply to bvlgari

and in the early morning when you finally do doze off.. the

alarms start ringing and everyone else wakes up totally

refreshed and ready to start their day? =O

thedragon profile image
thedragon

I have been very lucky with my doctors. I find that the younger ones are more willing to listen and admit when they dont know enough. My practice has about 4 doctors and the one i am seeing now (i can choose who i see) is really happy to listen. I asked about changing my anti depressents and she helped me decide. together! when i first saw her, she told me to make another appointment a week later so she could go and find out more information as she didnt know any more than me! its the older doctors and consultants often that think they know it all and are not willing to listen. That obviously is a generalisation!

family wise, they are all pretty understanding, my daughter who is a physio, tries to help, and we discuss options and she tries to find information for me

the worst bit is when Ive not slept and others want to do stuff the next day and Im too tired to do anything. it upsets me as much as them!

my partner of 4 years tries hard to understand and help, but i think he is getting fed up with it all.

Bella5, how are you doing with rls. Last time we talked you

were not finding a way to get any relief... are you finding something

that works?

You may also like...

Augmentation with DAs in RLS but what about Parkinson's - A question I've pondered...

or is it just RLS sufferers? Any thoughts to keep the early morning- or late night brain active?

Two questions concerning RLS

with that and the RLS. I am making an appointment to see my GP who knows nothing about RLS so l...

Question about quitting Ropinirole

I have shared with you. My question is, what withdrawal symptoms have those of you who have tried...

Thanksgiving and a Question

from requip. When I couldnt sleep for 3 days straight I kept walking i circles all night until I...

Question for Ellfindoe or Joolsg about Gabapentin please

have absolutely no RLS during the day time, and much better RLS at night (just shows how the...