The despair of restless legs.Is there... - Restless Legs Syn...

Restless Legs Syndrome

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The despair of restless legs.Is there any help out there for this disease

Conchita profile image
20 Replies

This is my 3rd in ght without sleep and I can hardly stand. I am currently on Neupro Patches (4mg) but will have to stop them as my skin is erupting in blisters and angry red patches.Looks as though I will have to go back on to Pramipexole which didn't work either.as you can tell I am in a moaning mood and finding it difficult difficult to get on with my day.If it wasn't for the sympathetic ear I can rely on from friends I n the co mmunity I don't kn ow what I would do. sorry to depress y ou all as I realise their are people much worse off than me.Take care and have many good nights sleep wise. Be st Love. X

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Conchita profile image
Conchita
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20 Replies
gypsy49 profile image
gypsy49

hi

i was on patches same as you worked for me for two weeks then all hell broke loose with RLS took few day get out my system sounds like you gettin reaction to the patches like i did ,

Conchita profile image
Conchita in reply to gypsy49

Like u I had Abadan reaction to the patches and am now off them and back to Pramipexole.As yetno difference in my sleeping but I live in hopes. You take care and thanks. Kindest regards

thedragon profile image
thedragon

Sending you hugs conchita....I think a few people on here are having a rough time of it at the moment.....we can't let this beat us....stay strong everyone .......group hug!!!!!

gypsy49 profile image
gypsy49 in reply to thedragon

<<<GROUP HUGGIES>>> think we all need them

Conchita profile image
Conchita in reply to thedragon

This is great. All these hugs make me feel better already a nd yes we must all stay strong because their will be a breakthrough in this drug ve ry soon. Sending you a hug so here goes

yep group hugs is in order today, im struggling with everything today

Gonzo123 profile image
Gonzo123

I have every sympathy with you because the nights are so long when you can't sleep but feel so tired

Conchita, you have my sympathy also, i feel for you because the RLS is terrible bothering you, nights without sleep is depressing, lots of hugs for you en strength!!

Amwaj profile image
Amwaj

A friend suggested that I try " Laminine Supplement " for my restless legs and I did. And now I can sleep.. No creepy crawly" feeling anymore. :)

Conchita profile image
Conchita in reply to Amwaj

Thanks for that Am going to try it and will run it past the Pharmascist.Itis really good to have the support of the group

in reply to Amwaj

I'm glad that it worked for you Amwaj... My sister bought me

it hoping that it would help me. I brought it into my doctor who

told me that it won't. He told me that if there was a product

that actually worked, it would make headline news. It would

be on the front cover of the newspaper... = /. Needless to

say, the bottle is on my vanity un-opened.

im the same , we dont mind a moan , we understand , email me if u would like too , just leave me a message , we need help

I'm pretty low tonight..it's 5:24am I was stuck on a night working

schedule that I made for myself at home. = / I started up with RLS

about 2 hours ago and it's severe enough that I am considering

taking narcotics again. When my cousin gave me one, it worked

amazing for me... I gave them up some time ago...they were causing

me all kinds of problems. I became immune to them. I took more than

prescribed - I needed to so my legs would settle down.

Honest Ladies and Gentlemen, I do need a hug. I am not feeling the

love in my household tonight. Everyone is sleeping in peace, NOT ME.

I'm thinking that with lack of iron, I should be out with my fangs (vampire)

I'm disgusted tonight. This schedule is getting old very fast.

in reply to

Sending hugs to you from across the pond, hope you are catching them.... :) I also didnt sleep last night, at all and i have a cold that is making me feel like rubbish. :(

in reply to

Oh -The dreaded cold..What a bummer. Well Wishes

sent back immediately! =) Feel Better.

We could do with a RLS dating website. If you are both awake all night and need to keep active, well.

If only one of you is awake at least the other will understand. If you both need to go to bed during the day it will be more convenient and give the neighbours something to talk about.

Of course, if you are young none of the above applies.

in reply to

Hahhahaha Ahahahahah.. yep. =)))

Miggles profile image
Miggles in reply to

Wonderful idea, but my wife isn't too happy with it.........lol

thedragon profile image
thedragon

Sending you lots of love and hugs Yikes, every day x x x x

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