When did you first notice your RLS sy... - Restless Legs Syn...
Please select all that apply:
Seemed to be after spraining ankle jumping off horse, but may be coincidental?
after being stung by sea urchins on holiday!
Hey! I voted for "when I was pregnant"...?
After a Major Op.
Seems like injuries/life events are a common factor so far.
See; What is/are the cause(s) of RLS?
I was a very fidgety child and remember my Mum saying I was never still, even in bed, but I didn't become properly aware of it (i.e. as impacting on my well-being) until my mid-twenties.
I, like helygen, was a fidegty child, and I grew into a fidgety adult...I didn't find out I had RLS until 8 years ago (53 now). The older I get, the worse it gets 
I remember pains in my legs from being even younger - my mother says the GP siad they were growing pains so not sure if connected to RLS but may strike a cord with others??
Hi, I was also told I had growing pains but my mother also said that she thought I had ST Vitus Dance! maybe this was RLS if so I must had had this since I was a young child but it only got worse and more painful when I got to 17.
I was always a fidgety child and adult, wife still tells me to "stop shaking your leg".
But starting interfering with sleep much later, probably 40's
Sometimes can,t sit still in evenings to watch tv when it's bad
Does not seem to interfere with daytime activities, ie work
Seems to be a problem from about 7 pm till maybe 4am
I arranged my life around it and tend to really sleep after 4am
I go crazy trying to go to bed earlier but sleep like a baby late mornings, like to 10am 11am
No pain but the really creepy crawly feeling in legs, sometimes up into the groin and rarely the arms
That's my story
My first pregnancy and it never left me, however has got a lot worse as the years have gone on.
My first pregnancy and it never left me, however has got a lot worse as the years have gone on.
since i was 19
Cant remember exactly, but around the age of 16-17, maybe earlier... I remember finding the cold spot in the bed at night when i seem to get funny sensations in my legs and that stopped whatever was happening as i didnt know back then what is was...
Since I was 19 when I damaged my back at work .
When in hospital with suspected MS!!!!!!....which turned out to be a nasty virus and a flat line reading of Vitamin D and IRON!!!!............
PS:-....OoooPs...bwt Im 54yrs old!!!!!!!!!!!..........ouch!
Had a very serious injury on my knee..I had it replaced,
the meds given to me were super strong narcotics..Only
then at age 45, did I tell my doctor that because of the
narcotics, I finally could rest my legs at night. His face lit
up and he knew that I had RLS. It took 20 yrs for me to
finally say something or to know that it was a disease.
Hello All
I live in the North West of the UK and have had RLS for 50yrs. I inherited it from by mother and seem to have passed it on to my son. i do have quiet times which is bliss but am unable to find the trigger. My GP recognises RLS but is reluctant to give Meds due to side effects so during bad spells I use co-codamol and hot baths during the night. I shall be 80 this year and apart from RLS and Bronchiectisis lead a very active life. Nice to be part of the RLS group
I first remember feeling the symptoms and the urge to try and walk it off when I was in the last part of my pregnancy when I was 28 years old . I am now 46 and over the years it has continued to increase in intensity....My 18 year old has been complaining of the same symptoms for a few years now.........
After taking Amytryptilene
I remember my mother repeating "Stop jiffling, you'll wake your little sister". That was about 1945 and I shared a big bed with my sister. I tried hard to stop "jiffling" but I couldn't.
I don't remember it being a problem after that until I was in my 40s.
I'm sure that was the beginning of my RLS.
I think mine started after spraining my ankle when I was about 11 years old
After a ruptured disc. A few months later a MRI scan revealed advanced degeneration of 4 lumber discs and spinal stenosis. After a year had a decompression operation, 4 discs been now inoperable. Still have rls continuously, legs always uncomfortable
i noticed it first i think when i was 18 and pregnant with my first child, has got increasingly worse since, im now in my 40's , its the awful weird feeling that goes with it all over me that makes this so much worse !
I can remember having to move my feet when in bed trying to sleep about 9 or 10 years old
I remember as a very young child having to share a bed with my older sister. She complained so much that I was always kicking her in my sleep that i was moved to a small camp bed. It has never stopped and at 72yrs old is getting worse. I cannot bear to wear tights as I want to claw at my legs and as a teenager felt the same with stockings. I steer clear of nylon. I discovered I had RLS only about 6 yrs ago and had to download info; for my GP who knew nothing about it. She was very grateful as she had other patients with similar symptoms and couldn't find out what it was. Very supportive now.
I was about 16yrs old. When lying on the sofa I needed to put my feet on the cold walls. My mother used to massage my legs and sent me to see a Doctor. He diagnosed me with growing pain.
I have grown and still have my fidgy legs!! I have been diagnosed today and waiting for my prescription of pramipexole. I am afraid that this will lead to augmentation
No idea what it was back and forth to doctor ,they didn't know , ready to slit my wrists ,going mad didn't know anyone with same problem it was a Canadian fill in doctor that worked out what the problem was ,sent to hospital had a few tests and put on different tablets
I was 69 and have it for a year. My dr said it was very unusual for it to start that late suddenly. On gabapentin 600 mg at night. It helps a lot as I can sleep better with only 1or 2 episodes of leg RLS at night. I can't imagine living with this since a child.
I had a few weeks of R.L. when I was twelve. Was living in the tropics and was recovering from a bout of dengue fever. The next episode was twenty years later when I had a chinese meal (loaded with MSG?). Am now 76 and have periodically had bouts over the years, helped with drugs such as valium, sofril and codine. Am now suffering again and trying the low FODMAP diet with some success but its only been a week.
Since I was 6 months pregnant with 3rd and last child. Midwife asked my why I spent all night walking around the ward when I looked so exhausted. I told her I didn’t know I just couldn’t rest as my legs and arms were so bad I would have happily had them taken off just to feel rested. I used to fall asleep standing up whilst pregnant and would then fall and hurt myself luckily never fell forward or hurt bump. Baby’s 2 now and my RLS is so bad my husband has had to quit work to become my and the kids full time carer. RLS has destroyed my life, my independence, my confidence, my husbands business and sanity. Under sleep clinic consultant trying to find meds that suit me.
When I was about eighteen in the evening .I found that knitting helped and it would go.
How well I remember that night.
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