Rituxan / Rituximab -- gastrointestinal side effects or coinciding viral infection?
I was brought into remission with cyclophosphamide and prednisone but I've been receiving Rituxan infusions bi-annually for the past 2.5 year...
FLAIR Trial - ErnieUK Final Round 6 FCR Surprises
As usual I walked into the hospital from the car expecting a bit of trouble with my Neutrophils and Red cell Levels, but never know quite whi...
Reduced transfer factor (KCo 53%, TLCo 54%)
Letter from rheum says " recent lung function tests showed KCo of 53% and TLCo of 54%, with normal lung volumes " Had CTPA and email stating ...
CLL 11q del, CD38+ unmutated and my bumpy ride during the FCR treatment.
After a reminder today of a member, I simply steal the time in my hectical life to finally write some, as promised earlier, about my treatmen...
Does my daughter have ana negative neurophyschiatric SLE? Cyclophosamide side effects?
Consultants believe she has an autoimmune condition which affects her whole body in particular the brain. She's had 3 relapses and intially t...
Rituximab side effects
I had rituximab infusions in feb for ra and was wondering has anyone experienced diarhea as a side effect. I have had it for a few weeks now ...
Rituximab causing wheezing catahhr and wet cough?
Rituximb causing wheezing catahhr and wet cough? Feeling very low after another build up of these symptoms which have now got bad enough for ...
Chronic itp. Latest treatment is rituximab
Was then put on romiplostim; count bounced around everywhere and I got flu-like symptoms which persisted for a number of months. Counts were ...
Cycle 1 of BR compared to FCR, and any advice regarding Port v. PICC line please?
I had 5 cycles of FCR four years ago, and although the nausea was dreadful, I didn’t miss a day of work as I’d timed the treatment each month...
Hi would just like some advice, I have WG taking Pred,Methotrexate, Rituximab and lots of other medications. I have not got very good teeth a...
Hi I had my first infusion today I’ve got a head ache and pain in my stomachedoes this pass , I was good having the infusion part from a litt...
I know after my Rituximab infusion ( which was 5.5 hours ) I was wiped out with a headache for a few days. But i'm not sure if Tocilizumab wi...
Post Rituximab wipe-out
Apart from the fact that I developed Cellulitis and that the first two weeks was much more painful than I expected, the new knee is a great s...
However, the reason I'm posting this is that I'm looking for info, other ppls experience etc....
Hooray It's not Carcinoid, Alls good nearly.......as the Hot Flashes continue. Could it be the Menopause 7 years after?
Re my thoughts that the Rituximab was failing I think that the worry of was having an effect on my system so I was having a bit of a flare wh...
FLAIR Trial - ErnieUK Dehydration in Round 4 FCR (and home made soup)
Well, similar problems to round three to start with. Results proved the thinking in the back of my mind, with red and white cell count proble...
Not a question just a statement - fed up
Last week or so I have been so unbelievably fed up, bad mood, ratty, very blue. Also over the last three to four weeks I've started having so...
2 Nd loading Rituximab done .. And good !
So home now with a rotten headache and tired BUT very manageable and I'm drinking water....
Started Rituximab today
I started back on enbrel in january and initially it seemed to be working but very slowly then I got a minor infection that wouldn't go away ...
A Good Result
I just wanted to update the conversation I had recently regarding a very confusing set of symptoms and many thanks to all who responded. My s...
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