I'm on Rituximab and wondering if it is safe to be around people that have been given live jabs?
The reason I ask is that my little grand daughter has to get a live nasal flu injection tomorrow and I know if we are on Rituximab we are not...
Does my daughter have ana negative neurophyschiatric SLE? Cyclophosamide side effects?
My 16 year old daughter has been ill since September 2016 following an insect bite which didn't disappear, before then she was a bright, happ...
What causes ITP..?
Well this is my 3rd ‘ detected ’ occurance of ITP in about 12 years....
EGPA and Bronchiectasis
Hello everyone. Diagnosed with non severe Churg Strauss 5 years ago....
Solve the problems
It started with blue fingers which I have had problems in the past with Raynaud's , Lupus,Lupus anticoagulant , May-Thurner , vertigo !...
Feeling really lost and scared.
My husband did have CLL but had Richters Transformation to Lymphoma....
Morning all, I am on Rituximab and have been on it since 2009, I usually have infusions every 9 to 12 months. I am currently undergoing tests...
Had a good report from the neurologist. He said it was the best he had seen my fingers and thinks the Rituximab is working ( slowly )....
Two years after stopping Ibrutinib muscle pains getting worse
Two years ago I stopped Flair trial of Ibrutinib and Rituximab and have been doing pretty well since then. I stopped the trial due to severe ...
CLLSA and Leukaemia Care Joint Response to NHS England regarding Ibrutinib Prescribing as per NICE TA
This is the letter sent to Professor Peter Clarke on 2nd July 2018 for the review of Ibrutinib prescribing. The recent decision by NHSE to re...
Recommendation required for Rheamatology consultant Gloucestershire or Bristol area. GPA knowledge essential.
Hi can anybody recommend a good Rheamatology consultant in either the Bristol or Gloucestershire area. I have GPA which has been controlled w...
Hi all please help me My kid is 7 years old she has given rituximab infusion 2 times but problem not solved her hemaglobin is some times 10.7...
Well , we spent last night organising my youngest son as he is off to uni in holland today , he on an early flight so we all went to bed earl...
ASH 2018: Professor Peter Hillmen on the Combination of Ibrutinib and Obinutuzumab in CLL: Timing Matters
has chaired the chronic lymphocytic leukaemia ( CLL ) trials sub-group of the National Cancer Research Institute ( NCRI ) in the UK since 200...
Coughing that seems never ending!
Hi everyone I will apologise now because this is a very long post. I have had 3 chest infections since January with a really bad cough....
medication r a hell, help
hi everyone, was diagnosed in nov 2016 with R A since then ive been on 4 different medication, none of them have agreed with me and with seve...
Foot and heel problems
I'm already having regular Rituximab infusions and Methotrexate and prednisone......
White cell yo-yo
They went up and now they have gone down again , the rheumy nurse checked back and they have been doing that from august , they went up quite...
That's the name of the drug the consultant has recommended to the transplant team one of the side effects shows it attacks my immune system a...
Working diagnosis Vasculitis responsible for Neuropathy secondary to R/A. Previous PMR diagnosis
Without sounding selfish, I think five years on steroids living your life is much better that 10 years of living in your bedroom?...
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