FLAIR Trial 2018 update
This trial is comparing ibrutinib alongside rituximab with fludarabine, cyclophosphamide, rituximab and venetoclax for chronic lymphocytic le...
Road to a BMT... oops just got there
Last time you heard from me/us was when my husband Mark began failing on Ibrutinib in Feb. Little did we know that Cancer Care Ontario would ...
Husband with CLL in Rituximab Therapy
Hello my name is Aylin. I'm new in the group....
Clonal Evolution, mutations and resistance to CLL treatment
When someone is diagnosed with CLL they have at least one clone of B lymphocytes that are growing faster than they should and/or dying less t...
POTs/ dysautonomia/ autonomic nervous system issues anyone??
Hello, looking for your experiences please and my release from hospital may depend on it!! I have been struggling with various lupus symptoms...
ITP and hair loss (alopecia)
I'm 60 years old, have been suffering from ITP for several years and was put on Eltrombopag ( revolade, promacta ) about 4 months ago. The dr...
Just getting through the day. Do you find this a supportive site/ informative site?
Today exhaustion - waiting for a methylpred. infusion on Monday to hold me until the RItuximab dose its magic!...
Bloating and Rituximab
Hi all, I trust you all had as good a xmas as possible given the diseases we endure. I have been like an hermit and not even had one drink bu...
How many Lupus patients here have been offered biologics?
I am wondering if any of the kind folk here can tell me if they were ever offered biologics for LUPUS and if so, which biologic? So, if anyon...
Just finished FIRST round FCR - what will happen next?
I just finished three days of FCR infusion. They waited for the third day to infuse the Rituximab, but I had Cyclophosphamide and Fludarabine...
Hi all I’m due my first round of IV Rituximab. Has anyone got any tips to keep me occupied during the 6 hour treatment and how did you cope ...
I have been selected to go on this drug Rituximab as an in fusion so that i can get of off steroids I take 50mg per day. This was given to me...
Platelets & me
I was given Rituximab as part of my treatment which might have helped offset it until 2015, but acquired ITP is suspected as a possible side-...
Just thought I would give an update... Today I have started on the Avacopan trial....
ASH 2017: Dr. Richard Furman on the importance of MCL-1 in CLL (chronic lymphocytic leukemia)
From the CLL Society website: As good as venetoclax is as a single agent, there are now many studies that show even more remarkable responses...
Lupus and hair loss
Hello. I have lupus and it is progressively getting worse....
Vitamin D deficiency?
I had a hospital appointment last week, only 2 months since rituximab infusion and my hands are so painful. The nurse gave me a steroid injec...
Ok so I had my Rituximab infusion and had problems with heart rate. Was not given the second part due to elevate blood pressure and got told ...
When will Rituximab start to work?
Hi its been 6 weeks since my ritux infusion and whilst at first I didn't feel any different, now i'm in more pain than ever! Is it the norm t...
I had my second day of chemo today after a bad night not being able to sleep because of restless legs. Consultant said it was the chemo - Ben...
Start a Community