I get Raynauds in my hands . I've tri... - Scleroderma & Ray...

Scleroderma & Raynaud's UK (SRUK)

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I get Raynauds in my hands . I've tried Losartan but it made no difference and am wondering if nifedipine would help.

DeedeeP profile image
10 Replies

I read Sandycharlie's post and it seems a lot of people take it with success. What dose do you need to take and are there any side effects? Am 52 years old and get Raynauds all year round - usual symptoms - white fingers, pain and pins and needles etc. but fortunately no ulcers - any suggestions?

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DeedeeP profile image
DeedeeP
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10 Replies
Anteater profile image
Anteater

I have tried numerous medication for my Raynauds but nothing really helps lol xx I have systemic scleroderma Raynauds and other auto immune conditions xx. Have been told that I have severe Raynauds and always have the dreaded ulcers ......

lynnco profile image
lynnco in reply to Anteater

hi, i have systemic scleroderma too, i also have pulmonary arterial hypertension. i tried illoprost infusions that gave me severeheadaches and didn't actually do anything for the symtems. i am now on nosarton but have reservations about that too.

Anteater profile image
Anteater

And I forgot to say that what works for one person may not on another so trial and error ...

sandycharlie profile image
sandycharlie

hi i have had bad side affects with nifedipine and came of it,but everyone if different, i would say see your doctor, i am waiting to see the rheumatologist now good luck and take care xx

scotgirl profile image
scotgirl

Nifedipine works for some, chat to your gp or rheumatologist re the best dose. It didn't work for me but nothing has made a big difference for me although I realise I'm really fortunate as my raynauds is pretty severe but I don't get ulcers. I really hope you find something that works for you x

mrsqwerty11 profile image
mrsqwerty11

Nipedine fortunately seems to work for me, I hv secondary raynauds from scleroderma, I've been on tabs 30 mg per day for 9 yrs now, I also found that NOT smoking helps, not smoked for 7yrs now.. As my blood pressure normal when I 1st started on tabs I used to get the odd dizzy spell but that doesn't happen now.. Good lucky: )

Blue-Bunny profile image
Blue-Bunny

Nifi is generally the way to go, for some people, it doesn't work, for others...it isn't bad. Though my dosage isn't as high as some others apparently. So your doc can see where they want to take it.

It's just a way of managing the symptoms. (In my case, colour change only). Side effects are usually rare ^-^

graygirl1 profile image
graygirl1

Hi DeedeeP. Re Nefedipine. It's case of " nothing tried,nothing gained". I have taken this for quite a while and has had no ill-effects from it. Give it a go, if you find it not to be effective you can ask your doctor to prescribe something else. Good luck!

rupesmum profile image
rupesmum

I've tried Nifedipine which gave me terrible headaches & Amlodipine which gave me swollen ankles. I'm not taking anything at present but I'm going to try some of the herbal/natural remedies I've seen on here.

DeedeeP profile image
DeedeeP in reply to rupesmum

Have you found anything that helps?

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