Does anyone have atrophie blanche - a foot ulcer condition linked to limited scleroderma? Have you had Iloprost treatment and has it worked?

[JemimaDoll]

[Hidden]

eeek just looked up some photographs of this condition, nope I don't have that and wish I could help looks painful.

[JemimaDoll in reply to Hidden]

Thanks for your reply. It is so painful, yes, every day. Each ulcer takes about 3 or 4 months to heal, and I have coped before when I have had 1 or 2 at a time. Now I have five ulcers altogether, so I am finding it very hard to cope with the pain. I am taking various painkillers, and I see a regular tissue viability nurse. I have my annual scleroderma check ups at the hospital next week, so I am going to ask about Iloprost, as sometimes I hear it can help with ulcers generally. It looks like you have foot problems too? I do sympathise.

[zenabb]

I have limited scleroderma but I don't know what atrophie blanche is. I have had a lot of Iloprost over the years. It depends what you mean by "does it work". It dilates all the blood vessels so the blood can go as far as possible to the extremities, and then the healing has to take place.

[JemimaDoll in reply to zenabb]

Thank you for your reply. I have limited scleroderma too. My tissue viability nurse diagnosed atrophie blanche. It is a rare ulcer condition with no real cure, and is linked to conditions like scleroderma, Raynaud's and vascular insufficiency in the legs (which I also have).

I just was thinking that maybe Iloprost might 'work' to help the ulcers heal. But I know it doesn't work for everyone. I'm just a bit desperate because of the pain of the ulcers, and I'm going to ask about it at my annual scleroderma check up appt next week. Have you ever had Iloprost treatment yourself?

[zenabb]

I have Iloprost every 8 weeks in the winter. It's a great help. Good luck.