Campaign for warmer homes?

[Ladyscar]

Does anyone know of or want to campaign the powers that be, to ensure all homes are insulated and heated properly for those with Raynaud's.

[Bee346]

Dont know of a campaign specifically for this....but it's a good idea...B

[Jessie122 in reply to Bee346]

Hello I am fortunate that my home is warm and well insulated. However since suffering with Raynauds my bills for heating have gone up. You can get grants from various places for extra insulation daughtproofing and cavity wall insulation. insulationgrants.info/warmf.... For some grants you need to be on benefits or Disability living Allowance. I do not know if having Raynauds would qualify for a Disability living allowance but in my personal opinion it should. I would be willing to sign any petition that would help. I know that there are lots of internet petitions.You can set up a petition using web site petitiononline.co.uk. It can then be circulated easily using Facebook e-mail ect. I do not know who you would campaign to? Minister for health?

Let us know how you get on.

Jessie122

[fairygoddess83]

I dont know of a campaign .. but im very interested in helping getting one set up as my home is freezing .. damp air up past your knees .. mold everywhere.. everything is getting ruined and to top it off my gas bill for the last 4 months was £900 im a single mum on little benfits.. my home is making me more ill .. and i ve asked my doc's for help to get me moved but they are not interested they say oh its not that bad .. just put another coat on.. sorry for the mini rant ... im well up for helping defo xx

[Hidden]

Having Scleroderma i get DLA -as a result of this i managed to get a brand new free combi boiler fitted for free under warmfront. As its a condensing boiler the bills are vastly reduced. I found out a week after i was granted this that they have now withdrawn it for people on DLA! However many gas companies do their own grants for insulation, and if you receive some types of ESA you can still get the boiler so its worth checking. You,re not likely to get ESA with primary raynauds - secondary raynauds is much more serious - but its worth checking! The reason i get DLA is because i need help in cooking meals, thats because the scleroderma can make my fingers swell, and i,ve had a gangrenous ulcer on one finger, and calcinosis on my thumb. Thats not to say that primary raynauds doesnt cause swelling so it might be worth applying. The DLA i get i look at as paying for my heating costs. I always think with primary raynauds you should get yearly autoimmune tests to check that you dont have Scleroderma/lupus as it took 10 years for them to ascertain that i had scleroderma.

[Ladyscar]

The problem is that grants are only available for those who own their own homes and not for those who are stuck with Local Borough or Housing Associations who tend to do the least to keep homes warm. I hope that there is someone on this site that knows how to run a campaign strong enough to make those powers that be to listen.