Erythromelalgia

[carolanntwin]

Can anyone please give me advice or any tips, i suffer with raynauds&erythromelalgia ,and the last few weeks developed a rash that burning and itching all the time thankyou.

[Connie75]

Hi, is this not all part of the symptoms of your condition? Have you been prescribed anything to help with the burning, itching etc?

Also, you should have been tested for other autoimmune diseases & faulty genes etc.

Maybe keep a food diary to see if anything in particular is triggering onset of symptoms, keep very hydrated as water will flush out any toxins in your body. There is a lot of information on the internet regarding diet, herbal remedies etc that may help you.

Good luck

[carolanntwin in reply to Connie75]

Thanks Connie 75 about keeping a diary to see if certain foods set it off.having a shower can bring me out in a rash,but not like this.going to make appointment at the doctors. but thanks for your help.

[Connie75 in reply to carolanntwin]

Hi, is it on your face too? Have you tried Protopic ointment? Ask GP to prescribe it to you, you can't purchase over counter.

[carolanntwin in reply to Connie75]

Hi its not on my face yet,not tried protopic will ask when i see my GP when i get the appointment. Thanks again take care.

[Barnclown]

Hello again carol ann. This sounds nasty. As you know, I too live with simultaneous raynauds & erythromelalgia. And my primary is systemic lupus. Whenever I have any kind of rash I take photos of it close up and if the rash lasts for more than a few days, I show it to a GP. The last time I had a rash lasting more than a few days, my GP added the topical steroid cream betnovate to my repeat prescription list...that time the burning prickling rashes were diagnosed as 'vascular' and cleared up within a week or so thanks to betnovate. So, if I were you, I'd be going to see a GP. Wishing you all the v best

[carolanntwin in reply to Barnclown]

Hi Barnclown nice too hear from you again.will take photo's down to GP when i get appointment.Its itching and burning with the rash all the time,but worse at night or have a shower.been using cooling gel .also used corticosteroid ointment.thanks again,let you know how it goes.

[Barnclown in reply to carolanntwin]

good! looking forward to your update... xo

[AMDP]

I take prrgabalin and that seems to help at night. Keeping my feet cool during the day helps too. Good luck Ax

[carolanntwin in reply to AMDP]

Hi tried pregabalin and something similar, but didn't see much improvement. But because i suffer from the two conditions ,its very changeable the night is very long don't like taking sleeping tablets all the time,but a gel pillow or hot water bottle with cold water in it helps when the erythromelalgia is mild.thanks again AMDP take care.