Is it common with scleroderma to get ... - Scleroderma & Ray...
Is it common with scleroderma to get hot flushes and night sweats? I feel like I did when I was menaupausal. Also having difficulty walking.
Yes I have experienced similar symptoms. Check on your medication as this can sometimes cause night sweats. I have found that it is not every night but usually end up changing my nightdress half way through the night!
AM
Not sure about flushes and sweats. Possibly because the physiology of your skin is changing (as the derma gets sclerotic), so its pores no longer open and close and hairs no longer rise and fall naturally for your body to self-regulate your temperature. I now find I need a several layers of thin blankets on my bed which I peel on and off during the night according to my body's hormonal rhythms. Duvets are useless, as I wake up cooking. Night storage heating in winter is also a problem, as it comes on during the night and I wake up boiling then it can take me over a half an hour to cool down again. Making sure I don't eat calorific foods before bedtime is also advisable. also, no hot baths and showers before bed.
In essence, I have impaired thermal self-regulation, so I must consciously do this for myself by managing clothing and blankets because my body can no longer do it automatically.
One other thought: some of your difficulties might be a side-effect of medication?
Re. walking, if your toes are stiffening up then your usual way of 'pushing off' into a step will be affected. Also, loss of fatty padding from soles of feet makes me feel as though I'm walking on gravel if in bare feet. Using gel insoles and orthotic shoe inserts (free on NHS) are a godsend.
Best wishes.
Tim
Thanks thats helpful.feet not the problem its my upper thighs and hips. Seeing consultant again in 2 weeks will discuss then.
I hadn't connected my feet as part of my medical condition. I keep getting "see corns" as I have now have little padding. I have a super podiatrist, use orthotic shoes with extra padding and I am able to get around so much better. The biggest hassle is the constant changing of symptoms, makes me feel neurotic! You just get on top of something and here we go again!
I went through a stage of waking up boiling and drenched. I was fortunate it didn't last too long.
Hi - I can only speak for myself, but I do experience night sweats from time to time. There are also days my hips hurt so bad that it is hard to walk. Please mention the symptoms you are experiencing to your doctor. Medication can be causing this. Feel better my friend.
Thanks will discuss with consultant on next visit in 2 weeks
Yes, absolutely. At this time of year I have the same symptoms....waking up covered in sweat and feeling my whole body is on fire. Not sure whether this is the medication, or a part of the Scleroderma.
I have had particular difficulty over the past 5 years walking, that is getting progressively worse( corns that are incurable). My last visit to the Rheumatologist, he explained that the pain in my legs was probably attributable to Arthritis/ and or Rheumatism.
If you discuss this on your next visit, the chances are you may be able to get help regarding these issues. Take care.
I can relate to the symptoms you describe as I am also experiencing the same...I wake covered in sweat and my body feels as though it is on fire..I also feel as though my heart is racing and my head throbs..I also have the aches and pains in my arms and legs......During the day I have been feeling very dizzy and as though I'm going to faint....I been told by my GP that I am menopausal and my symptoms are age related.....??
Please have your doctor the quantiferon test for Tuberculosis. I had your same symptoms. No fever, no cough, no chest pain. Just the "menopausal" hot flashes and night sweats. I've been on methotrexate and lefludomine. Back in 2010 I got the Mantoux test at my son's Middle school and it was negative. I went on Menopause on 2013 thanks to the methotrexate, so Last March when I started with the night sweats and difficult walking, my doctor sent me for a full blood work and It came back positive for Lung TB, latent. Right now I'm on Isoniazide treatment for 9 months. My whole family had to be tested for TB, but thank God they are clear. It was so scary. Maybe this info will help.
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