Hi all. is there a crest syndrome group, that meets in west yorkshire (england)

[Ceylon]

I would like to meet others .

[smiler2012]

Hi Ceylon,I have CREST syndrome but I live in East Yorkshire and would love to learn of any group in my area.I hope you do fnd a group in West Yorkshire and are able to meet up.good luck and best wishes for 2014 x

[Ceylon in reply to smiler2012]

Thank you for getting back to me . I do hope you to can find a group . Best wishes for 2014 x

[judyt]

Scleroderma Society have a web site which gives you that sort of information. If I remember rightly there is a co-ordinator for Yorkshire, not sure if it is both or just East or West.

[smiler2012 in reply to judyt]

Thanks judyt I will look into it but I am struggling with the web site since the changes were made.

[Ceylon in reply to judyt]

Thank you judyt, I will get on to this now best wishes for 2014 x

[Yorky]

Hello, a group used to meet at Chapel Allerton Hospital on the 2nd Thursday of each month. Don't know if it still does and I can't find the contact details. However if you contact the RSA or the Scleroderma helpline at Chapel All they should be able to put you in touch with someone. I think one of the ladies who helped to organise it was called Lynne Lister. Best of luck.

[Ceylon in reply to Yorky]

Thank you yorky, you have been most welcome . best wishes for 2014 x

[Yorky in reply to Ceylon]

Hello again, forgot to say that Chapel All hospital is in Leeds. The specialist nurse telephone number is 0113 3923035, it is usually an ansa phone. Best wishes to you too for 2014.

[Ceylon in reply to Yorky]

thanks yorky just got your e-mail, Thank you so much for the phone no i will ring first thing monday ill let you know how i get on .x

[judyt]

I looked again yesterday at The Scleroderma Society website. I am almost sure there was a heading for support groups last week!!!! A friend in West Sussex who co-ordinates a group there told me to look on The Scleroderma Society site, so I don't know what is going on. Perhaps send them a question I think there is a help heading somewhere.

[Ceylon in reply to judyt]

Thanks again judyt. kind regards x

[living-the-dream-ssc-ray]

Hiya have you had a look at the Raynauds and Scleroderma's group local contacts ? North Yorks is Tony Overend 01423 862551 ... not sure about West tho !

[Ceylon in reply to living-the-dream-ssc-ray]

Thank you, first thing monday i will ring them.Thank you so much .

[living-the-dream-ssc-ray in reply to Ceylon]

yay ! have a great weekend

[Ceylon in reply to living-the-dream-ssc-ray]

and the same to you x