Jooles34 in Raynaud's & Scleroderma - Care and Support 5 months ago
I am 36 year old woman and I have raynauds for years now but it all seems to be getting worse year on year, even though we have had some what of a mild winter. I'm not...
cwhaley1969 in Raynaud's & Scleroderma - Care and Support 4 months ago
My daughter was diagnosed with a Raynauds and Pernio when she was 13yo. The Raynauds seems to get worse every year. This winter she has developed ulcers. She is taking Nifedipine...
Lisa_Lovatt in Scleroderma & Raynaud's UK (SRUK) 4 years ago
...i have raynauds and i was just wondering what i can't take with having it as the other day i found out having things with caffeine in can make it worse that's what i read anyway...
Hidden in NRAS a year ago
I think I might have Raynauds, I have noticed my fingers go white and I get like a tingling/numbness feeling, I wear RA compression gloves and sometimes I wear them under my thick...
zowbo in Raynaud's & Scleroderma - Care and Support a year ago
my 9 year old daughter has raynauds and has had a blister on her foot that has broke and keeps weeping has anyone got any advise on this. Thanks in advance
I have had
Lisa_Lovatt in Scleroderma & Raynaud's UK (SRUK) 5 years ago
Does anyone with raynauds know how I can keep my legs abit warmer when I go out as the cold seems to affect my legs more, I do get pains in my hands and arms aswel but my legs...
Is this Raynaud's?
Blossom234 in Thyroid UK 3 years ago
... and on T3 only. The symptoms can return if I'm very very physically stressed as with disturbed sleep etc.
My son was told by GP (not tested) that he has Raynauds and is also...
Lupdaloop in LUPUS UK 3 years ago
I'm told raynauds is as a result of Auto-Immune, as is Lupus.
I have been suffering with numb white fingers and tongue this winter for the first time, I've had various Lupus...
weemac4 in Scleroderma & Raynaud's UK (SRUK) a year ago
... there is, also find that nails on fore and second fingers are flaking any one got many suggestions, wonder if this is part of Raynauds?
Can you take milk thistle? It's a herbal remedy...
Is this Raynauds
Hidden in Scleroderma & Raynaud's UK (SRUK) 2 years ago
... ignore. My fingers don't go blue, just very pale, and then back to normal. Could this be the start of Raynauds, should I tell Rheumi now, or wait and see if it gets more obvious so...
Judylynne in LUPUS UK 2 years ago
Does anyone have raynauds? It can be 100 degrees and my fingers and toes are purple. I'm the only one that wears mittens in the summer. My feet are always sensitive to walk and...
Nansue in Scleroderma & Raynaud's UK (SRUK) 3 years ago
Hi I am new on here I have had Raynauds for about a year now and have been coping ok until the weather got colder in October. My hands and feet are very cold and painful, I have...
angelah in Scleroderma & Raynaud's UK (SRUK) 4 years ago
hello there thanks for all your messages. just to update this message, i ve seen my doctor since writing this message, as i was being tested for secondary raynauds. these tests...
xshazx66 in Scleroderma & Raynaud's UK (SRUK) 9 months ago
Hello to everyone, just found this wonderful site, I was diagnosed with Raynauds about 4-5 years ago and being only 46 at the time like many others I didn't take it too serious...
alicatherine_ in Scleroderma & Raynaud's UK (SRUK) 7 months ago
... Raynaud's, but I am 72 years old and I suppose I should consider myself lucky that I escaped so long.
Take care and the very best of luck to you.
Raynauds can commonly...
Topwabbit in Scleroderma & Raynaud's UK (SRUK) 2 years ago
I need comfortable shoes and socks to help prevent blisters on the bottoms of my toes and on the tops of my toes near the nail. I am out of ideas.
Ihave tried lots of different
leezals in Scleroderma & Raynaud's UK (SRUK) 2 years ago
... release will help you in the long run, it will take a little time to start working.
You will find that gradually your raynauds will be more manageable but you still need to take...
Carol-C in Scleroderma & Raynaud's UK (SRUK) 5 years ago
... taking any medication my raynauds was affecting my tongue - it would go really numb from the tip back. Thankfully my medication seems to have knocked it on the head.
What medication do you take?
I take ramipril and amlodipine....
Jean43 in Scleroderma & Raynaud's UK (SRUK) 7 months ago
On Tues. a new Endocrinologist that I saw for the first time said that I have Raynauds, but I don't think I do. I saw her to get my thyroid meds lined out. I told her the tips of...
Is this really Raynaud's?
LauraMQ in Scleroderma & Raynaud's UK (SRUK) 8 months ago
... can get Raynauds without the colour changes and the sensation problem can be different for everyone as well.
It could be an injury if it is only on one finger.
I would go to GP...
APsnotFab in Sticky Blood-Hughes Syndrome Support 23 days ago
As many of us also have Raynaud's, I thought I would share this very helpful information from our friends at Scleroderma & Raynaud's UK (SRUK) called
Raynauds and sweating?
Serendipity16 in Raynaud's & Scleroderma - Care and Support 3 months ago
I have had Raynauds disease (primary) most of my life. I notice that I dont cope as well in the warm as I used to and have to try to cool down. I do sweat under my arms...
Raynauds in ears
DaleDiva in LUPUS UK 4 years ago
... ringing and they go red like my finger tips dalediva be interesting to see what answers you get to this x
Raynauds doesn't ALWAYS send things white. I mainly go red & purple, but...
Treatment for Raynauds?
Annie_M in Scleroderma & Raynaud's UK (SRUK) 2 years ago
Hello I suffer with limited systemic sclerosis (CREST) and the Raynauds associated with it is becoming unbearable. I have been taking high dose vitamins C and E and GLA for a...
Decongestants and Raynaud's
Serendipity16 in Scleroderma & Raynaud's UK (SRUK) 3 years ago
... - my raynauds is far worse when I take decongestants and be careful not all brands put the warning in the leaflet dispite having the same ingredients.
Did you know that, \"SUDAFED...
Scleroderma & Raynaud's
Legna in Scleroderma & Raynaud's UK (SRUK) 5 years ago
I was diagnosed with severe Raynauds several years ago and was diagnosed with schleroderma about 2 years ago. The scleroderma hit my internal organs more than it did my skin...
Living with Raynauds
raynaudssufferer in Scleroderma & Raynaud's UK (SRUK) 5 years ago
I have had Raynauds, well been diagnosed with it for about five years now and it sucks. I have people making fun of me for it and everything. I am a junior in high school and...
Hidden in Raynaud's & Scleroderma - Care and Support 2 months ago
... to raynauds as I have repetitive strain injury too, although my Dr wont confirm this as had this for years. Thanks
Hello, I was diagnosed with Raynaud´s last year. I also have...
Raynaud's and biologics
Hidden in NRAS 5 months ago
than the biologics but speak to your Rheumy team.
First Enbrel and now humira
Hidden in LUPUS UK 7 months ago
Anyone else with raynauds experience burning skin and overheating not just in summertime?
Yes!! On my fingers & toes. Mine was horrendous it only started around december, ive...
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