Fishing Trip: The intramural ME/CFS study at... - Ramsays Disease

Ramsays Disease

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Fishing Trip

Halflife profile image
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The intramural ME/CFS study at NIH Maryland

simmaronresearch.com/2017/0...

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Halflife
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readerlist profile image
readerlist

The first part of the study is apparently an attempt to level the playing field. Test after test after test is being done during the nine days a) to gather data and b) to ensure that nothing other than ME/CFS (and specified co-morbid diseases) is going on in these patients. At least in these early stages anything that looks off is being investigated. The NIH is calling the visit a “deep phenotyping” exercise

Important because using loose criteria in other research has raised confusion on what exactly is studied as shown in this research paper.

tandfonline.com/doi/abs/10....

Theresa60 profile image
Theresa60

Starting from nothing when 30 years behind the curve isn't a good idea.

Seascape profile image
Seascape in reply to Theresa60

I do agree Theresa treating this as though it has just this year been discovered and nothing at all were known wastes an awful amount of precious time reinventing the wheel.

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