Hello: Hello everyone! So I went to my... - Cure Arthritis Co...

Cure Arthritis Community

2,784 members596 posts

Hello

Twinks80 profile image
3 Replies

Hello everyone! So I went to my doctor on Friday because my pain is so bad and I'm not responding to the steroids anymore like I initially did with the Medrol dosepak. We know that I have some sort of Connective Tissue Disease, but not exactly sure now since my Anti-CCP levels, ANA were negative, RF and ESR were positive. My doctor checked a bunch of blood work on me on Friday so I'm hoping to have some answers soon. This can't be my life now...I have 4 little ones to take care of 😢

Written by
Twinks80 profile image
Twinks80
To view profiles and participate in discussions please or .
Read more about...
3 Replies
Prettypanda profile image
Prettypanda

Hang in there!! At least you're on the path to figuring things out? Sounds like you have a great Dr and family who loves you :) I know some days are so hard especially with little ones who don't understand how much pain hand holding can be or how tired mommy is... BUT maybe you feel like I do and don't quite understand why this is happening and get super mad about it - but have those few moments where your husband helps or your kids act sweet and cuddle up and for a few minutes you forget that you're sick. Hopefully with the right treatment those moments will last days!

Boxermommy profile image
Boxermommy

Please be careful with the steroids. Steroids, when taken for a long time, can damage your adrenal glands. If that happens you will end up being on steroids for the rest of your life because your adrenal glands will no longer work. That is a horrible situation to be in. Are you seeing a pain management doctor?

Twinks80 profile image
Twinks80 in reply to Boxermommy

I have an appointment on Tuesday to see my rheumatologist finally 👍

You may also like...

Hello I am Simba

Ear swelling with Sjogren's?

went to see the doctor and they said I had fluid build up but no infection. Now I'm noticing...

GP just stated I have rheumatoid arthritis

appointment with the doctor. When I got to the doctors today I kind of broke down. I told him I'm...

Breast implants and RA/Lupus

anyone have experience or info regarding a link between breast implants and autoimmune diseases?...

Methotrexate/medical marijuana

whenever I take my pills. And throw up slightly. I have a doctor appt coming up and will be...