Newbie needs advice please !

[Paula1602]

Good morning everyone

I was diagnosed with bronchiectasis a couple of years ago, and they said I also had Asthma.

I have recently found out that the Asthma is the main problem, and as it was undiagnosed for many years, it caused the lung damage ( bronch)

I have tried many inhalers with steroids but I continue to get a very sore mouth which I have learned is thrush due to the steroids., I got sick of having to use antibiotics for this problem. One doctor a couple of months ago gave me a new Inhaler, just once in the morning , this seemed to stop the mouth infections which was great - but since then I have developed a permanent cough. I now see an Asthma nurse who is great - she advised a tablet I can take in the evenings, but this has side effects of "nightmares, loss of sleep, stomach probs.....etc.." , so as I am awaiting a Knee operation and on painkillers and anti inflamatory tablets for this , I said I would wait until the op was over then try them. Since then the anaethsatist has advised that I take these but I am worried for the side effects and wondered if anyone had tried them and if they work? He just needs my cough to ease off ( due to the probs with anaesthetic ). Has anyone taken these ( sorry I have forgotten the name of them and I am at work so cant look )

Otherwise, has anyone any other solutions ?

I really hate this condition as I suffer from other problems that stop me walking etc and the breathing is very difficult lately as I dont feel the morning Inhaler does enough ( I do have Ventolin also but that doesnt ease the cough)

Any advice would be muchly appreciated !!

Thanks, Paula

[jillygirl Administrator LONG TERM WINNER]

Hi Paula, Sorry to hear your dilemma. I cant really offer you a soloution.

I found a problem with thrush and inhalers plus with antibiotics too.

With the inhaler i use which is called incruse I found my throat was dry and I developed a cough. I now use the inhaler then swish my drinks of water around my mouth before swallowing, this seems to work for me.

Hope that someone may be able to help you. xx

[Paula1602 in reply to jillygirl]

Thanks Jilly, I have tried the water trick and that doesnt work for me ! No problem, I will try the tablets over the weekend to see if they help without many side effects......everything we seem to take to help has unwanted side effects !!

[Nottobad]

Hi I have COPD and asthma I think it would be better for you if you join the British lung foundation site. As there are many people on there who would be able to help you as there are a lot of people with bronchiectasis. And other lung problems.

[Paula1602 in reply to Nottobad]

Thanks Nottobad - I did join the British Lung foundation site and went to a meeting but didnt get much joy from it as all they did was plan outings etc !!! I didnt even get the chance to talk to anyone. Will look to see if there is a forum, thanks anyway !!

[Nottobad in reply to Paula1602]

Hi if you do a search in the search box at the top of the page and put in BLF and then press follow. It's just like this site and the people are very friendly. It's a healthunlokced site. You speak to people like this one. I think you are talking about a breathe easy group.