Posts - PSP Association | HealthUnlocked

PSP Association

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Dad's Walking getting worse.

Hi there. My dad was diagnosed last year and my sister and I are just trying to help him navigate this awful disease as much as we can. He is still quite...

Hi there. My dad was diagnosed last year and my sister and I are just trying to ...

mamamermaid1

•5 hours ago

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Progressive supranuclear palsy research participation

Hello Sir/Madam, Please find the patient details I have submitted to participate in research and treatment of progressive supranuclear palsy. 1 PSP –...

Hello Sir/Madam, Please find the patient details I have submitted to particip...

1Brijesh

•6 hours ago

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Mum's PSP

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,her speech has really got very bad over the past month and I just wondered if...

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,he...

Blitzford72

•18 hours ago

8 Replies

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Choking with psp.

Hi only just joined this group and was hoping for a little information/ advise. My mum has psp and is now choking on everything she tries to eat and drink. My...

Hi only just joined this group and was hoping for a little information/ advise. ...

Jellybean219

•20 hours ago

14 Replies

psp awareness week #wecare

Just noticed this on X today. And huge well done to everyone who ran in the London Marathon today raising funds for PSPA!!

Just noticed this on X today. And huge well done to everyone who ran in the Lond...

NicolaD15

•2 days ago

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Speech and Word finding - a sufferers perspective

My wife first went to hospital in early 2020 with a soft voice and her face looked as if she had had a stroke, in March 2022 she wrote an email to me which I...

My wife first went to hospital in early 2020 with a soft voice and her face look...

Zerachiel

•2 days ago

16 Replies

Speech production technology

Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to...

Has anyone tried speech production technology, such as Stephen Hawking used, for...

TourEiffel

•3 days ago

4 Replies

London Marathon

Good Luck to James Weston and Luke Catleugh who are both running for the PSPA tomorrow in memory of Chris Weston. We'll all be cheering you on. xx

Good Luck to James Weston and Luke Catleugh who are both running for the PSPA to...

AnneandChris

•3 days ago

2 Replies

Orangetrunk

This is the first time I've posted. I live in California and heard about HealthUnlocked so thought I'd give it a try. My husband of 53 years has been...

This is the first time I've posted. I live in California and heard about Health...

Orangetrunk

•4 days ago

9 Replies

London marathon

Good luck James and Derek running in the London marathon tomorrow waving the PSPA banner!

Good luck James and Derek running in the London marathon tomorrow waving the PSP...

Doublereeder

•4 days ago

1 Reply

Drooling

Hi Karol has had a dry mouth since having peg fitted and nil by mouth for fluids . However he has started drooling a lot this week and I wouldn’t say clenching...

Hi Karol has had a dry mouth since having peg fitted and nil by mouth for fluids...

45purple

•4 days ago

5 Replies

Sharon has left us

After a month long fight in hospital my wife could not fight any longer. Yesterday afternoon I removed her oxygen mask and lay with her as she drifted away....

After a month long fight in hospital my wife could not fight any longer. Yesterd...

Zerachiel

•5 days ago

37 Replies

Ensure liquid meals

Please could I ask if anyone has experience of surviving on liquid meals only. My 64 year old husband has PSP and is in advanced stages. He does not want to...

Please could I ask if anyone has experience of surviving on liquid meals only. ...

Sun-flowerwearer

•6 days ago

7 Replies

Things to do for PSP – sing a PSP country song (badly!)

A bit of fun for a good cause. You have to watch the video - sorry! https://youtu.be/sTjJA8bBIY8 We have Tim Brown (Daddyt on this site) to thank – he...

A bit of fun for a good cause. You have to watch the video - sorry! https://you...

Richard33

•6 days ago

15 Replies

This Morning

Is anyone watching This Morning with the Salt Path couple?!

Old_Hall

•6 days ago

13 Replies

i hate PSP

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly, i wonder where the time has went, it is unfortunate now that she has been...

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly...

Hidden

•6 days ago

6 Replies

Eye sight

My mum has double vision ,one on top of each other not side to side ,she has a real problem with sunlight Has anyone heard of glasses you can get ? Concerned...

My mum has double vision ,one on top of each other not side to side ,she has a ...

Blitzford72

•7 days ago

9 Replies

Travel Insurance

I meant to say I don’t know if this is because I answered No to the question can your husband wash, dress and feed himself. In 2022 when we took the policy out...

I meant to say I don’t know if this is because I answered No to the question can...

Licquoricelover

•9 days ago

6 Replies

Travel Insurance

has anyone been successful in obtaining an Annual worldwide multi trip travel insurance policy including Cruise cover. We had one with Avanti which expired...

has anyone been successful in obtaining an Annual worldwide multi trip travel in...

Licquoricelover

•9 days ago

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Mum update (CBD)

Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still...

Thought I had finally better give you all an update on mum. Mum had a fall bac...

Araucana

•9 days ago

4 Replies

medicine

my wife was diagnosed yet, she is meeting next week to discuss different meds, does anyone have any recommendations or experiences that might want to share...

my wife was diagnosed yet, she is meeting next week to discuss different meds, d...

Advocate10

•10 days ago

5 Replies

Marathon!

Hi All I hope this is allowed. I came to this site to read about other peoples experiences with PSPA, as we navigate this journey with my Mother in law who...

Hi All I hope this is allowed. I came to this site to read about other people...

bananapancakes16

•10 days ago

1 Reply

brand new

my first day here, my wife of 37 years was diagnosed with PSP this morning.. It took a years to get this diagnosis, she was in an accident and had a TBI and...

my first day here, my wife of 37 years was diagnosed with PSP this morning.. It...

Advocate10

•11 days ago

1 Reply

Mom's Journey

Hi all. I haven't been on in a while. Last month, my mom with psp fell and broke her pelvis. After hospitalization, she was moved to a rehab facility. It...

Hi all. I haven't been on in a while. Last month, my mom with psp fell and bro...

christie329

•11 days ago

2 Replies

PSP Spasms

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pain and spasms in her legs, she is on Co-Caroldopa 4 times a day and our GP as...

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pai...

Prius1

•11 days ago

9 Replies

Palliative care

We have a home visit booked for this afternoon for a palliative care plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank...

We have a home visit booked for this afternoon for a palliative care plan to be ...

Italiansunsets

•12 days ago

2 Replies

CBD awareness

Hello this is my first post. my brother lives with me and he has always had complex needs. Diagnosed with CBD in 2021 but symptoms since 2018. Off his feet...

Hello this is my first post. my brother lives with me and he has always had co...

Campsiewalker

•13 days ago

8 Replies

Travel Insurance

Wife recently diagnosed with CBD. Lost use of 1 arm, other one is less under her control. Balance is variable. Looking to travel to Spain. Any...

Wife recently diagnosed with CBD. Lost use of 1 arm, other one is less under...

1957spurs

•14 days ago

6 Replies

CHC FUNDING

Hello has anyone had CHC funding removed because they see the needs are managed ?We are due for a review and there was a veiled threat last time. It's such a...

Hello has anyone had CHC funding removed because they see the needs are managed ...

Northstar1

•15 days ago

32 Replies

Painful toes - mother with CBD

My mum has CBD, and whilst still able to walk, has decreased mobility and has been suffering from painful toes, initially from chilblains, but still...

My mum has CBD, and whilst still able to walk, has decreased mobility and has be...

PeterPanandLostBoys

•15 days ago

2 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

Dad's Walking getting worse.

Progressive supranuclear palsy research participation

Mum's PSP

Choking with psp.

psp awareness week #wecare

Speech and Word finding - a sufferers perspective

Speech production technology

London Marathon

Orangetrunk

London marathon

Drooling

Sharon has left us

Ensure liquid meals

Things to do for PSP – sing a PSP country song (badly!)

This Morning

i hate PSP

Eye sight

Travel Insurance

Travel Insurance

Mum update (CBD)

medicine

Marathon!

brand new

Mom's Journey

PSP Spasms

Palliative care

CBD awareness

Travel Insurance

CHC FUNDING

Painful toes - mother with CBD

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive