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PSP Association

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London marathon

Good luck James and Derek running in the London marathon tomorrow waving the PSPA banner!

Good luck James and Derek running in the London marathon tomorrow waving the PSP...

Doublereeder

•3 hours ago

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Drooling

Hi Karol has had a dry mouth since having peg fitted and nil by mouth for fluids . However he has started drooling a lot this week and I wouldn’t say clenching...

Hi Karol has had a dry mouth since having peg fitted and nil by mouth for fluids...

45purple

•16 hours ago

2 Replies

Sharon has left us

After a month long fight in hospital my wife could not fight any longer. Yesterday afternoon I removed her oxygen mask and lay with her as she drifted away....

After a month long fight in hospital my wife could not fight any longer. Yesterd...

Zerachiel

•2 days ago

32 Replies

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Ensure liquid meals

Please could I ask if anyone has experience of surviving on liquid meals only. My 64 year old husband has PSP and is in advanced stages. He does not want to...

Please could I ask if anyone has experience of surviving on liquid meals only. ...

Sun-flowerwearer

•2 days ago

7 Replies

Things to do for PSP – sing a PSP country song (badly!)

A bit of fun for a good cause. You have to watch the video - sorry! https://youtu.be/sTjJA8bBIY8 We have Tim Brown (Daddyt on this site) to thank – he...

A bit of fun for a good cause. You have to watch the video - sorry! https://you...

Richard33

•3 days ago

13 Replies

This Morning

Is anyone watching This Morning with the Salt Path couple?!

Old_Hall

•3 days ago

9 Replies

i hate PSP

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly, i wonder where the time has went, it is unfortunate now that she has been...

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly...

Hidden

•3 days ago

3 Replies

Eye sight

My mum has double vision ,one on top of each other not side to side ,she has a real problem with sunlight Has anyone heard of glasses you can get ? Concerned...

My mum has double vision ,one on top of each other not side to side ,she has a ...

Blitzford72

•3 days ago

9 Replies

Travel Insurance

I meant to say I don’t know if this is because I answered No to the question can your husband wash, dress and feed himself. In 2022 when we took the policy out...

I meant to say I don’t know if this is because I answered No to the question can...

Licquoricelover

•5 days ago

4 Replies

Travel Insurance

has anyone been successful in obtaining an Annual worldwide multi trip travel insurance policy including Cruise cover. We had one with Avanti which expired...

has anyone been successful in obtaining an Annual worldwide multi trip travel in...

Licquoricelover

•5 days ago

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Mum update (CBD)

Thought I had finally better give you all an update on mum. Mum had a fall back in Feb which resulted in a broken nose and slight skull fracture, still...

Thought I had finally better give you all an update on mum. Mum had a fall bac...

Araucana

•6 days ago

4 Replies

medicine

my wife was diagnosed yet, she is meeting next week to discuss different meds, does anyone have any recommendations or experiences that might want to share...

my wife was diagnosed yet, she is meeting next week to discuss different meds, d...

Advocate10

•6 days ago

4 Replies

Marathon!

Hi All I hope this is allowed. I came to this site to read about other peoples experiences with PSPA, as we navigate this journey with my Mother in law who...

Hi All I hope this is allowed. I came to this site to read about other people...

bananapancakes16

•7 days ago

1 Reply

brand new

my first day here, my wife of 37 years was diagnosed with PSP this morning.. It took a years to get this diagnosis, she was in an accident and had a TBI and...

my first day here, my wife of 37 years was diagnosed with PSP this morning.. It...

Advocate10

•7 days ago

1 Reply

Mom's Journey

Hi all. I haven't been on in a while. Last month, my mom with psp fell and broke her pelvis. After hospitalization, she was moved to a rehab facility. It...

Hi all. I haven't been on in a while. Last month, my mom with psp fell and bro...

christie329

•7 days ago

1 Reply

PSP Spasms

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pain and spasms in her legs, she is on Co-Caroldopa 4 times a day and our GP as...

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pai...

Prius1

•7 days ago

9 Replies

Palliative care

We have a home visit booked for this afternoon for a palliative care plan to be put together. Does anyone have any words of wisdom or tips for us please? Thank...

We have a home visit booked for this afternoon for a palliative care plan to be ...

Italiansunsets

•9 days ago

2 Replies

CBD awareness

Hello this is my first post. my brother lives with me and he has always had complex needs. Diagnosed with CBD in 2021 but symptoms since 2018. Off his feet...

Hello this is my first post. my brother lives with me and he has always had co...

Campsiewalker

•10 days ago

8 Replies

Travel Insurance

Wife recently diagnosed with CBD. Lost use of 1 arm, other one is less under her control. Balance is variable. Looking to travel to Spain. Any...

Wife recently diagnosed with CBD. Lost use of 1 arm, other one is less under...

1957spurs

•10 days ago

6 Replies

CHC FUNDING

Hello has anyone had CHC funding removed because they see the needs are managed ?We are due for a review and there was a veiled threat last time. It's such a...

Hello has anyone had CHC funding removed because they see the needs are managed ...

Northstar1

•12 days ago

32 Replies

Painful toes - mother with CBD

My mum has CBD, and whilst still able to walk, has decreased mobility and has been suffering from painful toes, initially from chilblains, but still...

My mum has CBD, and whilst still able to walk, has decreased mobility and has be...

PeterPanandLostBoys

•12 days ago

2 Replies

Pleasure and Pain

My mum 80, was diagnosed in 2022 with PSP and it has been a fairly rapid decline. I lived with her and used to shower her before work and came home at lunch...

My mum 80, was diagnosed in 2022 with PSP and it has been a fairly rapid decline...

mumnme

•12 days ago

4 Replies

CBD diagnosis

After 4 years of pushing him, pushing for tests and watching a 6 foot plus ex Royal Navy football/rugby player fall, loose the use of his right hand and leg,...

After 4 years of pushing him, pushing for tests and watching a 6 foot plus ex Ro...

Georgiomurfio

•12 days ago

12 Replies

Running in aid of PSPA

Whilst my husband, Chris, lost his fight with PSP at the end of December 2019, our middle grandson James Weston will be running as part of the PSPA team in...

Whilst my husband, Chris, lost his fight with PSP at the end of December 2019, o...

AnneandChris

•13 days ago

5 Replies

PSP speech

Husband has psp for about 5 years has no mobility balance very bad frequent falls speech nearly unintelligible I am very frustrated re speech. Have carers...

Husband has psp for about 5 years has no mobility balance very bad frequent fall...

Morag1952

•17 days ago

3 Replies

Couldn't wake Mum up

Hello everyone. It's not often I post here, however I read lots of the posts and take comfort in this community. My Mum was diagnosed with PSP in 2018. She now...

Hello everyone. It's not often I post here, however I read lots of the posts and...

Spiderwebb21

•18 days ago

16 Replies

Seizures

Hi everyone, my Dad is in the later stages of PSP, his speech has pretty much gone apart from the very occasional word, he’s now in a wheelchair and is...

Hi everyone, my Dad is in the later stages of PSP, his speech has pretty much go...

jmorrish

•18 days ago

8 Replies

Husband with PSP

Hi there My husband was 80 last week also diagnosed with Psp after an initial diagnosis of Parkinson’s He is Madopar four times a day plus to Amantandine...

Hi there My husband was 80 last week also diagnosed with Psp after an initial ...

Poodlelady1

•20 days ago

3 Replies

apathy

hi This is my first post, my husband 79 was diagnosed with PSP 18 months ago. My biggest frustration and upset is his apathy and lack of communication. We can...

hi This is my first post, my husband 79 was diagnosed with PSP 18 months ago. M...

Tulipstaffie

•22 days ago

8 Replies

One more star in the sky

My mom, who had PsP, is now a star in the sky. The last stage was brutal. her husband and kids were there with her for this journey and we try and console...

My mom, who had PsP, is now a star in the sky. The last stage was brutal. her hu...

momme

•22 days ago

15 Replies

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Posts - PSP Association | HealthUnlocked

PSP Association

London marathon

Drooling

Sharon has left us

Ensure liquid meals

Things to do for PSP – sing a PSP country song (badly!)

This Morning

i hate PSP

Eye sight

Travel Insurance

Travel Insurance

Mum update (CBD)

medicine

Marathon!

brand new

Mom's Journey

PSP Spasms

Palliative care

CBD awareness

Travel Insurance

CHC FUNDING

Painful toes - mother with CBD

Pleasure and Pain

CBD diagnosis

Running in aid of PSPA

PSP speech

Couldn't wake Mum up

Seizures

Husband with PSP

apathy

One more star in the sky

Search posts

Latest poll

What are your main concerns as a carer?

Topics

Archive