another name - another date: I am adding to... - PSP Association

PSP Association

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another name - another date

kay1 profile image
kay1
21 Replies

I am adding to the ever growing number of losses to PSP, it came racing in and ravaged him for the final four days, with no fight left, my lovely Frank left us, family were with him and we all had chance to say how much he was loved and will be missed.x

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kay1 profile image
kay1
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21 Replies
jillannf6 profile image
jillannf6

hi kay

i am so sorry thatm Frank has gone to this PSP

H e is a tpeace now and will be much missed by you all

stay strong and plz stay on athe site

hope you are ok

i know how mcuh FRANK meant ot everyone

lol JIll

and A big HUG

hmfsli profile image
hmfsli

Hi Kay,

So sorry to hear of Frank's passing. What a comfort it must be that you were with him and were able to say goodbye. Wishing you and the family all the best at this difficult time.

h

Kay, I am so sorry for the loss of your Frank, but so glad he was surrounded by those who loved him. Blessings to all of you as you go forward now.

Jay29 profile image
Jay29

Hi Kay, I am so sad to read this news of Frank and I too hope that you find comfort from being there with him to say goodbye. He is now at peace and free from PSP.

Jan

marusela profile image
marusela

wellome Frank to guardian angels world be strong Kay....he is in peace now

I am so sorry to hear this. Mum too has only days left to go now. There is no swallowing happening at all now and she chose not to have a PEG.

JoJo-K profile image
JoJo-K

Dear Kay

So sorry to hear of Franks passing, please take comfort that all the suffering for him and all the family whou've had to watch what this horrid disease does, has now ended. He is now at peace and this is what I wish for you and your family.

God bless my lovely

Xxxx

kayley21 profile image
kayley21

Kay my thoughts are with you,at this sad time please stay strong,Franks pain has now gone psp is an awful disease,my mom in final stages and my dad passed away 4yrs ago with psp

2 parents same disease unbelievable.love and best wishes to you and your family at this sad time xx

Peter3 profile image
Peter3

Dear Kay,

I am so sorry to hear about Frank. Take comfort from the fact you and your family were with him and the final days were not too long.

This awful disease.

My love and thoughts are with you at this sad time.

Peter3.

shasha profile image
shasha

hello kay

even though i did not know you or frank - i am new to this site - you have my deepest sympathy and blessings too- this is a vile disease

love shasha

Kathy profile image
Kathy

Oh Kay,

I'm SO sorry, I'm siting here with tears rolling down my face. I send much love to you and the family. Your posts and responses on this site have become one of my regular reads and I feel I know you and Frank personally. My deepest , most heartfelt sympathies on your loss and may Frank rest easy, finally released from this cruel condition.

Lots of love and hug

Kathy profile image
Kathy in reply to Kathy

HUGS!

Kathy xoxox

kay1 profile image
kay1

Thank you all so much for thoughts and love. Another soldier may be down, but we will continue the fight against PSP, so very grateful to fund raisers and those that give time and support to members.

x

denmob profile image
denmob

I am so sorry to read about your loss. It is good that your family had time to spend with Frank. My thoughts are with you.

JudyJ profile image
JudyJ

I am also new to this site and don't know the background with you and Frank, but I do understand deeply how hard it is to lose someone so close, so loved. You'll be in my thoughts and prayers.

Respectfully,

Judy Johnson

jimandsharynp profile image
jimandsharynp

Sorry to hear of your loss. Frank's battle with PSP is over and he is at peace. I can only pray that you will also find some peace in the days ahead. This is a tough disease on both patient and caregiver as we are all finding out. When do you think PSP first showed signs in Frank's body? Not the diagnosis but the first symptoms. Please take time for yourself and pamper yourself in the days ahead. That's what Frank would want for you.

Jimbo

laroux profile image
laroux

I'm also new to this site. I offer my prayers to you and your family.

ddspan profile image
ddspan

Kay,

You are in my thoughts and prayers. My Dad Don, passed away Dec. 8th and he went incredibly fast also. He went from sitting up, smiling and eating into bed on Thursday and by Saturday we lost him. Unbelievable -- thankfully we were all there too.

So glad to hear you will stay on this group and fight the fight. We must get funding and recognition for the sufferers and family of this dreadful disease. But now take some time for yourself to heal and adjust to life without your Frank. Know we are all thinking of you and giving you one great big giant hug.

Deepest sympathy.

Hugs

DeeDee

kay1 profile image
kay1 in reply to ddspan

many thanks for your thoughts, as fast as we lose one member, there are new people finding the site to join, it would be so good if funding and research provides the right answers and treatment for the newly diagnosed x

NannaB profile image
NannaB

So sorry Kay. You are in my prayers. May you know peace at this difficult time. x

Aine2 profile image
Aine2

Hi Kay , my deepest sympathy to you and your family on the loss of Frank , My thought's and prayers are with you all at this sad time ... xxx

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