My mum has been in hospital with aspiration pneumonia. She is very anti a puréed diet and thickened liquid and up until recently, food has really been her only pleasure. We/she now have to make a decision about her diet as otherwise, we have been told she will be in and out of hospital with pneumonia.
That aside, she is in a terrible state since she has been home from hospital. We cannot get a word out of her and she seems to be very distressed, she is in bed and writhing constantly. She can't keep still for a second. She has had periods like this in the past, but never as sustained. She is also arching her neck backwards all the time and just looks distressed.
Is this something others have been through? We don't know if it is a stage of PSP or whether she is ill. She was checked by a doctor today and urine and lungs are ok.
I must admit that for the first time I am really concerned that she has had a huge decline in her illness. I hope not and that she will be better once she has fully got her strength back after the pneumonia.
Love to all of you going through similar