..I was 18 and was in my first term at Sheffield Hallam University. We had thought something was wrong for a while but couldn't pin-point when he had changed. It took months and months of frustration, telling Dad he needed to go to the doctors, before a family friend had told him it might be beneficial.
In the December of 2008, the results came back but there was so much speculation around it because it's such a rare disease.
Sitting in the dining room around Christmas, I asked Mum the questions she was dreading to answer. Yes it's terminal- that's when I felt my whole world had come crashing down. Who's going to walk me down the aisle if Dad isn't alive? Why isn't there a cure? Why him? Why us?
Written by
HannahDaykin
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Hannah...reading your blog brought tears to my eyes. I lost my dad (not to PSP) unexpectedly in February this year and I can feel your anguish and pain. He was there to walk me down the aisle etc. but we take so much for granted and I thought he would be around forever...enjoy each special day you have with your dad.
Your dad would want to see you married and settled but it may not be possible
Try to b thankful that he is still around - children can lose their parents at any age and there is no God -given right to your dad's living a long life -he has got this PSPand you would not want him to suffer if the time came when he had to go?
This may sound cruel but a good friend's husband died aged early 50s when his children were 11 and 12 - they have grown up to be super people (their dad and mum?s influence combined) and alll one can say is there but for hte grace fo God go i
i am not religious at al l by the wya- brought up CoofE but long lapsed
Friends saya they r praying 4 me but
it is practical help and love which is required not prayers!
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My rock... my hero... my dad
Is this the end for my dad?
My Dad is now at peace
