Newby here 🙋‍♀️

[Jellybenz]

I was here a year ago. I was told my partner of 13 years had possible PSP. You know the response. He has what? So I joined here to learn about it. Then told 8 weeks later he hasn't got it? And now again have been told he has PSP and msa traits. So I'm back again to help him and myself on this so far horrific journey.

[AJK2001]

It doesn't help does it? I would tend to go with it doesn't matter what you call it, if this forum helps then that's reason enough to be here. Hope it is useful to you. xxx

[Jellybenz in reply to AJK2001]

Thank you so much. X x

[Hidden]

Hi Jellybenz... it is smart to gather information now. Mom had PSP and it changed everything when she was finally diagnosed... she was happy & l was befuddled as to why... she said at least the disease had a name... she confided that she was beginning to think drs, family & friends thought she was making up symptoms to get attention. Make the best of each day. Sending hugs to you both... Granni B

[Jellybenz in reply to Hidden]

Thank you so much x x