PSPA Support Networks

[HelenPSPA]

We've got a range of #SupportNetworks meetings regularly via Zoom.

Meetings include:

28 October @11am Newly Diagnosed Group

29 October @2pm Hertfordshire Local Group

6 November @11am London Regional Group

10 November @2pm Lincolnshire and Suffolk Regional Group

12 November @2pm Cambridgeshire Regional Group

23 November @2pm Oxfordshire and Berkshire Regional Group

23 November @2pm Leicestershire Regional Group

If you need support, no matter what stage of your #PSP or CBD journey, find out more about our support networks at pspassociation.org.uk/infor... or by contacting our Helpline at [e-mail] and 0300 0110 122.

[Marian_M]

Hello Helen,

Is it only possible to attend when you have a question? Or can you attend just to listen in and share perhaps?

It would be the first time if I would attend. I always wanted to join a gathering for family members or caregivers.

In my case it would be my father who suffers from PSP almost for 6 years now...

Kind regards

Marian (btw. we live in the Netherlands)

[HelenPSPA Administrator PSPA in reply to Marian_M]

Hi Marian

You don't need to ask questions or share information, you can just attend and listen if you prefer.

We do offer Q&A sessions with healthcare professionals too but we don't have a date for the next one yet. I'll post on here when we do - as they are good to listen into also.

Best Wishes,

Helen

[Bedfordrower]

Hi Helen,

My wife was finally diagnosed in March this year after 2 years of symptoms. She can not walk unaided and is rapidly losing her speech. We seem to be going down hill rapidly. Does that put us in the newly diagnosed category? If so myself, Sally and her carer would like to join the zoom call.

Can you give us log in details?

Regs

Paul

[HelenPSPA Administrator PSPA in reply to Bedfordrower]

Hi Paul

Yes that would put you in the Newly Diagnosed Group. To join the meeting, please email our Helpline on [e-mail] and they will send the invitation information across.

[Autumnstone]

Hi Helen, I attended a Zoom meeting for Kent area on 7th October & I thought another one was scheduled for the beginning of November. It was a great meeting which my husband ( he has PSP) & I really thought was worthwhile, as we met another couple very similar to ourselves. Can you tell me if another meeting is planned.

[HelenPSPA Administrator PSPA in reply to Autumnstone]

Hi there, yes there is a meeting planned for 4 November at 2pm. If you'd like to attend, please email [e-mail]