Continuing Healthcare tips

[Kevin_1]

As always 'Care to be Different' has it's finger on the pulse of CHC.

These are their new tips for getting and keeping CHC funding.

caretobedifferent.co.uk/14-...

(Am I spamming the forum yet? Hope not)

Best wishes to all

Kevin

[Hidden]

Kevin, your posts are full of useful information... keep on keeping on!

Please give Liz a kiss on her forehead from me & tell her l will be throwing axes for both of you today in the USA. But just one each because it is so Brrrrrr outside. Granni B

[Kevin_1 in reply to Hidden]

I will

She will be delighted to hear your posts.

You are a heroin to her!

Hugs

Kevin

[Hidden in reply to Kevin_1]

AND LIZ IS A HEROINE TO ME...

LOVE & HUGS... GRANNI B

[Kevin_1 in reply to Hidden]

Strong women both!

Hugs

[Tippyleaf]

Hi Kevin

We are fast approaching our first review so another timely post which I shall be following up. It is so nerve wracking the real fear of loosing CHC funding!

Thanks Kevin

Love Tippy

Xxx

Ps we missed you today

[Kevin_1 in reply to Tippyleaf]

Good luck!

Yes, these things are beyond stressful!

I so regret not being able to come today!

Love and hugs

xxx

[Kevin_1 in reply to Tippyleaf]

And it sounds like I missed one ivredible day.

Nest time.

xxx

[BattlingCHC]

Kevin (and anyone else!) would appreciate your info on whether OTHER CCGs are encouraging CHC claimants to ask for new "retrospective" considerations of CHC claims when the reality is that they haven't completed the processing of the first one (made several years ago)?

I've documentary proof the CHC team were sent the CHC assessor's papers saying Mum had "passed" the CHC Checklist and a full assessment was needed.

I'd also be interested in any advice you can give on which parts of NHS England organisation intervene when a CCG is not compliant with national procedures and performance standards. This particular CCG is already subject to an NHS required improvement plan and has been required to thoroughly audit its CHC practices. My experience with them suggests non-compliance with those demands too.

[Kevin_1]

Hi Battling CHC

I've looked at your old posts. You eally have been through the mill!

Simply put it appears that many CCG's have resorted to unlawful practice in order to stem the flow of funds.

It is not unusual for the assessments to be sub par and for the scoring being derisorily low.

Next it is not uncommon for the assessment for assessments to be very late or not happen at all. I seem to remember that the DST should take place within 28 days of the Checklist being completed.

As for retrospective assessments. They get themselves into this position because they didn't do the job properly the first time around. If a substantial amount of time has gone by then they need to re-assess to see what the current needs are. Remember the DST is also about developing a care plan which should be up to date.

Following a new DST they should back date funding.

However the system is in such chaos in most CCG’s...

A complaints letter is a good start. All complaints are required to be placed on file for the inspectorate to see and they always look. In my days in the NHS avoiding written complaints was seen as very important. Now they appear so desperate they seem not to blink and mostly ignore them.

If I were to want to put a complaint in, if the team were not responsive I would write the Chair of the CCG. They most often don’t know the detail of what is being done and a message from to the CHC Team manager is most powerful.

Are you aware of Beacon NHS advocacy? It is an arms length advocacy service and they can be very good.

beaconchc.co.uk

They used to give an hour free advice over the telephone which could be used over a number of shorter calls. They would be the best people to advise you on your next step.

I hope you shake the coconut out of the tree. It took a lot of shaking before we got anywhere.

Good luck

Kevin

[BattlingCHC in reply to Kevin_1]

Hi Kevin

Thanks again. It makes me feel a bit better knowing there's a sympathetic ear listening.

I've gone through the formal complaints process (to no avail), including writing to the Chief Officer and to the more junior staff. What I haven't done, though, is to write to the Chair of the CCG - I'll try that.

One of my irritations is that when I write to the CHC team and Chief Executive, they don't reply to the points put, they don't reply at all (literally often) or repeat the message that they want me to follow a procedure which I've already explained to them is unlawful and impractical. My relative is dead now - she isn't available to be "assessed" and the records of her care are largely missing.

I know it's always possible to involve the Ombudsman but fear he / she is incapable of doing the "digging" that's really needed to nail the CCG's misbehaviour. I really see my best bet as getting NHS England to do another investigation of the CCG. It's going to be more than usually challenging to organise, though. The usual route is to involve NHS England at the review panel stage; not possible for us as we need the incomplete first assessment to be completed BEFORE we've got a case to take to panel.

GRRR!

[Kevin_1 in reply to BattlingCHC]

Hi

I am so sorry your relative has passed.

I really do understand your justifiable anger. Yo were clearly failed by a crumbling system.

Don't write the Parliamentary Ombudsman off just yet. In a recent conversation I had with a specialist Adult Care solicitor he told me that Social Services are truly frightened at the involvement of the Social Care Ombudsman and that they do dig down properly.

Good luck, we need voices like yours to raise these issues.

Best

Kevin

[BattlingCHC in reply to Kevin_1]

Thanks Kevin, I'm very grateful for your reply.

Will have to get back to the same slog next week, oh what FUN!!!

[Kevin_1 in reply to BattlingCHC]

I was looking through CHC this morning and came accross this.

continuing-healthcare.co.uk...

You are probably way past this level in your knowledge and understanding, but I thought to sent it to you anyway.

continuing-healthcare.co.uk...

Best to you

Kevin

[BattlingCHC in reply to Kevin_1]

Hi Kevin

The info helps in several ways and I'm grateful you sent it.

Compass has obviously encountered the kinds of obstruction, evasion, downright misinformation and aggression we've experienced … and they've been able to find ways of getting past them. It gives me hope I might too. Also I'll contact them ASAP and ask whether they're prepared to give a few quick tips over the 'phone on how I can best deal with this particular CCG.

Thanks again.

[Kevin_1 in reply to BattlingCHC]

Great

They will give you a free time limited consult. Just ask when you book for a call back. They do it by phone appointment.

Glad it washelpful.

Strength to you.

[AnneandChris]

Hi Kevin

It is so good to have you back after your trials and tribulations.

You are a mine of information and I thank you for all the research you've done.

I've got everything crossed that the application for Chris will go through without any battles.

Having a bad weekend, so this forum always helps raise the spirits.

Thank you all and I'll keep on keeping on.

Hugs

Anne