ALWAYS TRYING NEW THINGS...: Has anyone... - PSP Association

PSP Association

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ALWAYS TRYING NEW THINGS...

StayAtHomeDaughter profile image

Has anyone tried Glutathione?

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StayAtHomeDaughter profile image
StayAtHomeDaughter
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6 Replies
Dadshelper profile image
Dadshelper

I had never heard of it before. Little searching shows it's used for a wide variety of issues including Alzheimer's and Parkisons at times. I'd speak with the doctor before introducing a new medicine, there is always the possibility of interactions with medicines being taken.

Ron

enjoysalud profile image
enjoysalud

Hi, my son died of PSP (no brain autopsy done) May 4, 2017. His first symptoms appeared March, 2014.....DOUBLE VISION, FATIGUE, SLURRED SPEECH. He immediately went in for medical DX and help. He was DX January, 2015 with Parkinson's (PD). This DX was incorrect. He was later, Jan 2017, DX with PSP.

When his first symptoms appeared I had him undergo a micronutrient test with SpectraCell Labs, June 19, 2014. GLUTATHIONE should be >42%. My son was deficient, 36%. At that time he was under the DX of PD. Much has been written about PD and deficiency of GLUTATHIONE. I started my son on IMMUNOCAL and N-A-C. Both supplements are precursors to GLUTATHIONE. Google for more information.

I again had him take the micronutrient test July 27, 2016 (following two years of the supplements). He tested at 44% which was high borderline.

I believe the N-A-C helped. He was on a number of supplements, but not enough. What started him on a downhill was his first bout of aspiration pneumonia (Nov 2016) and his second (March 2017) was worst, hospitalization for 7-8 days for AP + sepsis.

Looking back, and hindsight is no sight, if I had known about the positive changes that B1hcl (thiamine) is doing for many on the PD site (this all came about after my son's death), I would have given him high doses of B1. I was giving him a Vit B complex but his Neuro did not think this was helpful and suggested I stop. Dummy me, stopped. Both he and me were unaware that my son had PSP, not PD.

I understand that PD is not one of the PRIME OF LIFE BRAIN DISEASES. The protein produced in the brain by the two diseases are different.

PSP certainly is a PRIME OF LIFE DISEASE, but I think if the beginning symptoms are not allowed to progress as quickly, my son would have had a longer and better quality of life. Since my son eventually died, and nobody knows what causes, prevents, or stops the progression of PSP, I would have gladly experimented with a benign vit and supplement.

You do not need a prescription for either the N-A-C or the B1 (thiamine).

Los Angeles, CA, USA

StayAtHomeDaughter profile image
StayAtHomeDaughter in reply to enjoysalud

We also have loosely tried Poly MVA, which has tons of B1; but the taste and cost make it difficult...perhaps I will keep looking for ways to integrate it more thoroughly. Thanks for your thoughts!!

enjoysalud profile image
enjoysalud in reply to StayAtHomeDaughter

I'd go on the Parkinson's Unlocked site and read on the B1hcl. I am 78 and started a low dosage of B1hcl last Aug, 2017. I am up to 500mg morn and lunch. It has helped me with balance, pills don't bet stuck in my throat, etc.

It is inexpenive. You can buy the capsules thro (Solgar) Amazon.com and empty the capsule into a liquid.

For the Glutathione, the IMMUNOCAL is VERY EXPENSIVE, but the N-A-C capsules not so much.

Best to you!

StayAtHomeDaughter profile image
StayAtHomeDaughter in reply to enjoysalud

I am trying her on a spray for her mouth...it is said to absorb better. It was not too expensive, so we'll see!

She is out of state with my son and sister for a few weeks, so I sent it with them. Hopefully iy helps!

JubileeRanch profile image
JubileeRanch

Yes I give my husband Glutathione among other things. He does a liquid form by Quicksilver....3 pumps under the tongue for 30 seconds twice a day.....not sure how good it’s working because he take a multitude of other things. I know when he misses some of part of his scheduled things 3 times a day he does seem worse...but unfortunately he never seems to REALLY improve....what I give him is very expensive, not sure I will continue when I run out of the current supply.

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