PSP drug update.

[grafixapn]

Not sure how many of you in the USA were asked to be interviewed by a drug company? 4 people at my local PSP support group were selected, my wife and I were one of the 4.

The interviewer refused to name who she worked for, but did tell us that she came to Phoenix, AZ from Canada. For agreeing to be interviewed we were told they would be sending us $350 US. We were asked a good number of questions always in what I would call the WHAT IF type of questions. I came away feeling that there may be a infusion form of drug that they said wouldn't be a cure, but might do what Tasigna does. At my local PSP support group we had one member who told us that a trial he is in seems to be working, and that he was told that thr company is hoping to fast track the treatment through the FDA.

As I learn more, I will keep you all updated.

Andy

[enjoysalud]

Thank you....I appreciate you sharing this post. I know it takes precious time, but it offers hope to those of us on this site.

Los Angeles, CA, USA

[grafixapn]

The bigger problem is that knowone can say when or even if the drug will be approved. It all comes back to time, and with each day those with PSP have brain cells that are dying. I see my part to report everything that I learn, but for today the best option, if one can afford the cost is the drug Tasigna. For the record my paying for the drug that is keeping my wife alive is eating into our savings bigtime! I too want anything that our health insurance will pay for…

Andy

[LuisRodicioRodicio]

Thank you.

Hugs.

Luis