Thickening agents : Has anybody experienced... - PSP Association

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Thickening agents

Jeas72 profile image
8 Replies

Has anybody experienced sickness with using thickening agents ? My mum has only been using them for just over 2 weeks as she was choking on her food and fluids but the last few days she has suffered terrible stomach pains followed by diahoorea which leaves her feeling very weak.

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Jeas72 profile image
Jeas72
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8 Replies
Tippyleaf profile image
Tippyleaf

My husband has used Nutilis thickener for nearly 2 years without any problem. It took a while for him to get used to the taste but he had no tummy upsets with it.

Have there been any medication or dietary changes at the same time??

Hope it soon settles

Love Tippy

in reply to Tippyleaf

Hi Tippy,

My brother has been on thickeners for a few months now.

It took a while for him to get used to them and now he panics if a drink is passed to him without thickeners.

He hasn't had any stomach/sickness problems so far. Maybe check with your doctor?

Big hugs.

Sue x

Jeas72 profile image
Jeas72 in reply to

Thanks Sue for your reply it’s good to know that the thickeners dont seem to have affected others could just be mums actually got gastroenteritis.

Xx

Jeas72 profile image
Jeas72 in reply to Tippyleaf

Hi Tippy, thanks for your response. Mums diet has been changed to a purée diet so it could be that change that’s causing it.

I guess it could simply be gastroenteritis I suppose when it’s a new diagnosis i am just thinking everything is connected to PSP.

Xx

Katiebow profile image
Katiebow

My husband had all drinks thickened and never had a problem with stomach upsets. He hated them at first but became used to th consistency after awhile.

Love Kate xx

Jeas72 profile image
Jeas72 in reply to Katiebow

Thanks Kate, yes mum really dislikes the thickening and says they make her more thirsty as the drink is thick it doesn’t quench her thirst.

I’ll keep trying it thou with different flavour juices xx

Katiebow profile image
Katiebow in reply to Jeas72

I used to buy fresh fruit juices or fruit squash that he liked, thicken and then freeze them in small individual snack bags. When he was thirsty I would blast them in the microwave and then squash until they were like an ice slush and spoon feed them, he found that very refreshing. Xx

Jeas72 profile image
Jeas72 in reply to Katiebow

That’s a great idea I’ll give that a try thank you xx

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