My dad has recently been diagnosed with PSP - PSP Association

PSP Association

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My dad has recently been diagnosed with PSP

5 Replies

Hi my dad has recently been diagnosed with PSP I don’t really like looking on websites about this so thought I would join to get advice and learn about other people’s experiences

5 Replies
Dadshelper profile image
Dadshelper

Welcome to the site. The search feature will help you read back posts and get lots of info. Ask questions to anything you like, if you're upset and need to rant go ahead. You'll find some of the issues that may arise you can prepare for but most likely you'll be reacting to whatever your dad is dealing with at the moment.

Ron

If you edit your profile to the country you are in,or tell us the country you are in, people from those countries would be better able to answer questions about what is available.

enjoysalud profile image
enjoysalud

I agree completely with Dadshelper (located in the USA). Use the "Search Healthunlocked" located on top, far right, on the same line as HEALTHUNLOCKED written in green. There put in the subject you want more info on and people who have posted on that subject, their postings will come up.

I more than agree with Jeff166 (located in the USA). It's important to put your county in either your profile....when you click on the smiley face next to our screen name, it will take you to our profile.....the reason your country is soooooooooo important is that different countries have different laws (cbd oil for example), different health benefits (like in the USA where the majority of medical costs are paid with one's own pocket or the UK whose taxes pay the national health system which offer many perks). In addition, clinical trials for PSP are not all available in all the countries. It helps us to help you, the more information you share with us.

It will serve your advantage if you take time to explore how to use this site and therefore avail yourself of all it has to offer.

Good luck, Margarita, Los Angeles, California, USA

Hi Goobaa!

I'm sorry PSP has entered your family.

The suggestions of my "chat" colleagues are wise and based on their different experiences. In my case they have been very helpful.

This disease manifests itself in a similar but different way in each patient. The participants in chats like this offer practices and solutions to learn from, and through the "trial and error" method, achieve a quality of life with interesting moments despite everything.

By private mail I send you our particular experiences on PSP-RS that we hope you can find useful.

Hug and luck.

Luis

Joandbear profile image
Joandbear

Welcome to this caring site. You can ask anything and get good responsible answers

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