Holiday with mum

[Elisa67]

My mum has PSP that was diagnosed last year but this was after many appointments over previous years to establish reasons to her deteriorating health. When my sister and I finally got over the shock and slowly coming to terms with what this illness will do to our mum we decided to have a girl s holiday. We took her to Portugal and along with our daughters made memories that will help us smile through the dark times. New on this site and have been reading about others and not feeling so alone and scared. Thanking you all

[doglington]

Welcome and well done. Thats the right attitude.

Feel free to share.

love from Jean xx

[Yvonneandgeorge in reply to doglington]

Yes well done lovely memories for you all to share xxxxx

[Elisa67 in reply to Yvonneandgeorge]

Thank you x

[Elisa67 in reply to doglington]

Thank you x

[Nanny857]

Hi Elisa, I can imagine the shock you felt, it is scary, but stay with us and you will receive lots of support and help here, as I have. What a lovely thing to do for your mum, a girls holiday making lovely memories for you all. Hope you get to make lots more. Lots of love Nanny857xx

[Elisa67 in reply to Nanny857]

Thank you xx

[Marie_14]

Elisa that was a great thing to do. You will all share that happy memory for many years to come. As someone said stay with us as we have all gone through it or are going through it with loved ones. So there is a lot if help and support here.

Hugs.

Marie x

[raincitygirl]

Welcome Elisa and well done!

What a great response to your mom's diagnosis! Keep it up, keep helping her build memories - there will be enough years of immobility to come.

Anne G.

[NHGrace]

Welcome! You’re approach will serve you and your mom well in the years to come. My mom was diagnosed two years ago today (the day after mother’s day) and, in another ironic turn of fate, she is being referred to hospice today (for services more than “stage”). When she was diagnosed we went to all her favorite shows and joked we were “ladies who lunched” (albeit between PT and other appointments). She fell and got concussed a year ago, so the decline has been sharp, but I’ll never forget the first year when we did all kinds of memorable things. Keep living and prioritize your time with her (at least as and when you can) - life is short!

[LostinHeadSpace]

Elisa, Great job seizing the moment! We're trying to arrange the same idea with my husband and kids for this summer.

[Teeker]

Hi Elisa, welcome to the PSP family group. Now that you have joined u

[Teeker]

Sorry my fingers are working faster than my poor brain. You will be able to have all the support and advice. There is always someone who has been through the ups and downs of this horrible disease or others who are experiencing the same as you.

My husband has PSP and has great difficulty in walking. He was diagnosed with Parkinson's for 7years and was rediagnosed with PSP nearly 2years ago.

We are determined not to let this horrible genie called PSP to ruin our lives. My husband has a mobility scooter and he gets around on it so we can still go out and take it with us when we travel.

This Friday the 18th, we are flying to Toronto,Canada to visit our niece for 2weeks and of course the scooter goes too.

Hope you and your mom manage to make mmore happy memories. Sending hugs and much love. Teeker