I joined this site 2 months ago and have been reading everyday
It is heartbreaking. I have been with love of my life for almost 40 years.We have 3 adult daughters and 1 beautiful grandson. We lived in the same home in Sydney for almost 40 years.
Approximately 2 years ago my energetic hard working hubby announced that we were selling and moving out of Sydney cos he could not work or keep up with maintenance of our very large home.
We sold and while the sale was going thru my middle daughter announced that she was having identical twins. We had sold and could not turn back so we moved 1.5 hours north of Sydney
My daughter went in to early labour at 25 weeks. 2 tiny little boys were born. 770grams and 558 grams. The little one Ethan passed 25 days after he was born. A tragic time for our family. Aiden is now almost 2
Around that time we noticed a big change in Barry (hubby) 63 years old
His eyes seemed vague and he walked slowly. We saw a Neurologist that diagnosed him with stroke and dementure. Barrys memory was perfect so I questioed it. An MRI showed calcification and he appeared to have had ashimic attacks
We went back to the Neuro and each time Baz would be worse..slower, speech slurring and his blank blue eyes
The neuro then sent us to a Geriologist and as soon as Baz walked in she started firing questions at him and doing various tests on him
Every test was a yes etc. She announced that Baz had PSP. This was prior to Xmas.
Baz is now very rigid on his right side and very sore in the right shoulder. He has had numerous falls and he is extremely emotional..incontinent, constipated and coughs every meal or drink
I dont know anyone in this area and have found it very hard to cope. We now have an OT and a speech pathologist who visits
I am not too sure how advanced Barry is but I want to make the rest of his life full of love and lots of Happy moments
We just came home from a 2 week vacation in Sth Africa (his dream). It was hard but we had lots of help
I hope I haven't babbled on too much. I just felt it was time to say Hi ❤