Clinical trials California : clinicaltrials... - PSP Association

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Clinical trials California

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clinicaltrials.gov/ct2/show...

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abirke profile image
abirke

B's brother lives in FL about 3 hours away from Jacksonville.. However , I don't know if he would volunteer if he could not be reimbursed for at least travel costs. Did it make mention of reimbursement or is it understood you volunteer all the way! His parents live near Mayo in Arizona...but dad has dementia and mom is almost 90.....

AVB

Out of curiosity I did some digging around and on the site is a list of a dozen or so other places in the USA that are helping with this.

I saw one was close and had a point of contact listed. I reached out to the person and we had a very nice and long phone conversation.

The info I got was they are primarily looking for people in early stages who will consent to a variety of neuro and physical tests. They are looking for a genetic marker that can be tested for.

My father was not considered a good candidate due to him being in latter stages of CBD.

Ron

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