Got back from a golden wedding party went to gethe the washing in tripped over the washing pole and went flat on my face ,come inside feeling very sorry for myself to an explosion in the downstairs toilet my husband had made it upstairs leaving a trail of ---- everywhere ,told him to get in the shower then cleaned up , the moral is font take anything for granted x x
Woe is Me: Got back from a golden wedding... - PSP Association
Woe is Me
Written by
allotmentartist
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35 Replies
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Sounds very familiar, hope you changed before you started cleaning up.
What a crappy end to what sounds like a nice afternoon out.
Helen xx
It was a lovely afternoon no I just got stuck in it is the first time it has happened luckily I have a strong stomach and plenty of cleaning equplenty, they do say in sickness and health in the wedding vOwston don't they lol x
I hope your ok after your unusual end to a nice afternoon out, I expect a good scream and rant , has helped .if not a lovley cupper might do it...Brenda. .xx
Well he proceeded to choke and as I have hurt my haname in the fall in could not bang him on the back in was laughing and crying at the same time and he was oblivious such is psp x x
Hope you haven't done too much damage to your hand. Hope your ok tomorrow,...Brenda. .x
I hope you recover quickly.
That must make care difficult to say the least.
I have stopped banging Liz's back when she chokes. She says it does not help.
Does it help for you folks?
xx
That's interesting Kevin I always pat dads back when he coughs and sputters! Perhaps it's not a good thing....? X
I don't know.
I think it triggers some sort of reflex.
Liz says it doesn't help.
I'm going to ask her if I can start doing it again to see if it does help.
There's so much in this illness I don't understand!
Hugs
Kevin
xxx
I was told to get john to blow his nose when he starts spluttering and ut seems to help. Xx
Blow me it works!
THANK YOU
xxx
How ?
xx
Quoting VronB
"I was told to get john to blow his nose when he starts spluttering and but seems to help."
Well, I don't know... but it does!
Somehow it clears her choking which is centred on the epiglottis area. She can't cough it clear anymore.
Beats me, but four or five times today it worked a treat.
I'm happy and a little non-plussed.
xx
i don't think it helps him but it helps me !!
I don't feel so helpless.
xx
Chuckling.
I know what you mean!
I am going to try it again if Liz permits.
Sometimes she says one thing and means another.
She chokes a lot these days.
xx
Is that the food ? Do you chop it or puree it ? I just chop but I have bought a ricer [ as recommended by nanaB ] ready for the puree stage !
xx
Even thickened drinks can get caught in her throat. Liz is still managing normal food if I make it soft.
She still copes with bread which we bake almost daily. That will be a hard one for her to give up.
Yes - I keep the pieces of food small. We do a lot of pasta and rice dishes. Also potato hashes of many different kinds, or mashed potato with sauces mixed in. So its just salads that need to be made small and finger style eating.
I have just bought a 'nutri bullet'. Its not arrived yet. I plan to introduce fruit and vegetable smoothies into our diet. They can have rice, bulgur wheat or oats (both pureed) in them too.
It will be unbearably healthy, but it means we can quietly slip across to liquid foods without a big heart rending jump.
Hopefully it will deal with the excessive amount leaf veg. we have grown this year.
As you might guess - the kitchen is my chillout space!
xx
Oh, I wish we lived near and you could cook for me !!
Yesterday our daughter came for dinner and I cooked a meal, just cut Chris' up small. Maybe I've been too cautious. He can still cope with drinks.
I don't give him salads though.
Eating out was such a shared pleasure for us. A big loss.
xx
Yes, eating out and just sitting together was big for us too.
So much is taken away with PSP isn't it?
I'm not a great cook... But I am a man cook - and so I big it up on the names.
Cheese hash is called 'crushed and buttered potatoes with fine cheddar, caramelised onions and a hint of smoked garlic.'
Chuckles.
xx
Shit, literally! Poor you!! Hope you are ok?!!! X
Got tears in my eyes now never expected any replys , will be OK x
Bless you!! Remember we ALL support each other!! X
Hope so too off on holiday on ,monday I have taken one of Ms painkillers will see in the morning , will be OK. At leasthe it was an event full day ,a good job I have a rubber nose or I would have a couple of shiners too now that would take some explaining x
Oh, allotmentatist
This is PSP and life happening.
I'm so sorry...
We should make a pack of PSP cards and play snap!
My experience is that PSP conspires with life's little tragedies to turn them into a full on trauma.
I should keep a book on this. So often something goes wrong and I know it will get compounded that day.
Thanks for sharing.
Would it be wrong to say I am glad I am not the only one?
Wishing you a better day.
Warmly
Kevin
Well I think I've got off lightly hand much better today and psp is behaving enough for me to pack ,so hols here we come got a bit of bruising but not much thank you for all the replies will remember that about patting mick s back, it is so hard just to stand by and watch though luckily it is only random and not every meal x
Have a good holiday!
XX
Thank you keven I'm sure we willx
Agree with Kevin. Personally I find a sense of humour often saves us - although it can be rather a black humour !!
Have a good holiday,
love, Jean x
Totally agree Jean, wetc are both looking forwaRd to u or holiday x
Oh deary me what a calamity sounds like a sketch from a comedy show but I'm sure it wasn't funny at the time. Prior to this wicked disease I bet you would never be doing such intimate things for your husband, it's amazing how you just get on with it despite the injury. Just after Christmas I had a really bad tummy bug and was having to prep food and feed Ben whilst throwing up. I say prep, it was wheetabix or soup at every meal for 10 days poor chap. Have a great holiday, where are you going?
Love Kate xxx
Dangit!!!! Hope you are OK?
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