New to site

[patlodge]

Hi I'm a district nurse working in Dorset . I have a great friend who is suffering with PSP so I'm hoping to gain more of an inside to her condition

[easterncedar]

Hello! This is the place for that! Welcome!

[Yvonneandgeorge in reply to easterncedar]

Welcome everyone is so helpful and friendly on this site, my husband was diagnosed in 2014 xxxx

[Marie_14]

Hello and welcome. How I wish there were more people like you? It would make everyone's life so much easier. Your friend is lucky to have someone willing to learn more.

Marie

[Katiebow]

Welcome to this wonderful site, full of love,support and invaluable advise.

Kate

[EricaE]

A warm welcome! I only joined last week but already I've had lots of advice and felt very supported. I'm sure you will too and everyone here will help you to help your friend.

[Julieandrog]

If you contact the PSP association they do amazing professional packs on request. All I ask is that there is a concerted effort to raise awareness, it is all we can do, so if you attend any multi disciplinary clinical meetings share your knowledge. The majority of peeps on this site have spent sometimes years between different specialities.

Early diagnosis is vital, not for any treatment, there is none, but to maintain a life for as long as poss and access appropriate services.

Best of luck

Julie

[patlodge]

Thanks to all for your imput. I will contact and get pack for workplace

Pat

[jillannf6]

I AGR EE WIHT U ALL

LL JILL\

XXXXXX

[daddyt]

Hello and welcome. How good of you to ask about PSP... this could be an opportunity for you to learn more about this dreadful disease and hopefully share the information with your peers. You'll soon discover just how many health professionals no little or nothing about this rare disease and the struggles that caregivers and patients experience daily. Once again... welcome.

[Hidden]

Welcome to the group.Ask away, I'm sure someone here will be able to guide you in the right direction.

Dee in BC