Waiting for the other Shoe to drop. - PSP Association

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Waiting for the other Shoe to drop.

Noella21 profile image
22 Replies

Went to the cancer clinic on Wed. My cancer has progressed from my T6 vertabrae to my C2 . Must go back every 3 months or call if pain gets worse or I loose feeling in arms legs or anything unusual happens. I am not having any more exteme measures taken. Comfort only. It is matter of seeing who goes first R or me. We will take each day as it comes. I want us to stay at home if at all possible. I have to prepare my kids who think I am super woman. Keep us in your prayers.

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Noella21 profile image
Noella21
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22 Replies
PSPwife profile image
PSPwife

You are both in my prayers.

Richanne profile image
Richanne

Noella, I can't begin to imagine being in your situation. I knew from various posts that you had something wrong with you but no idea it was so serious.

I do hope you have good help sufficient to keep you both in your own home.

I'm not the praying kind , can do no more than think of you and send hugs.

Rx

jillannf6 profile image
jillannf6 in reply to Richanne

I agree with you

ll jill

ccxxxxxxxx

easterncedar profile image
easterncedar

Noella, I have seen amazing courage and devotion in this community, but what you are doing is beyond this ordinary sort of heroism. That you were fighting so to care for your husband all this time, never speaking of yourself, oh, I haven't the words. Your children aren't alone in thinking you are super woman. I do hope you can take off the boots and cape at least now and then, and that you get some more help. Love and peace and hope, Easterncedar

Noella21 profile image
Noella21 in reply to easterncedar

It is strange how your perspective is affected by being aware that you have a terminal illness. I really appreciated being able to care for others I think it is what has kept me going. I will continue to do so as long as I can. It is what I do best.Thanks for your kind words.

york profile image
york

Thinking of you both xx

Tugun profile image
Tugun

You and your family are in my prayers.

Yvonneandgeorge profile image
Yvonneandgeorge

You are an amazing lady, you are in our prayers, sending you a massive hug. Yvonne xxxxx

doglington profile image
doglington

Thinking of you both. Its a hard road and I am full of admiration for your courage.

Lots of love, Jean xx

Escada29 profile image
Escada29

I am lost for words but am thinking of you xx

Kevin_1 profile image
Kevin_1

Oh, Noella!

Yopu have so much to cope with.

We are thinking of you.

Love

Liz and Kevin

xx

NannaB profile image
NannaB

You are both in my thoughts and prayers.

❤ XxxX

Robbo1 profile image
Robbo1

Love and prayers from me too, you lovely lady. God bless. X

Heady profile image
Heady

Sending very large hug and much love.

Lots of love

Heady

Trillo profile image
Trillo

Omg that is soo tough, in my prayers and thoughts . Gid blesd

abirke profile image
abirke

Noella I am sitting and reading and crying for you.....Let your family know and let them know it all. I spoke with a chaplain who made sense that it's important to tell family all that's happening do not shelter the patient do not shelter the kids but tell them what you would want to be told......just talk to them,...They'll understand more than you know cuz you are a super woman and love you and want to understand...

love you

AVB

Marie_14 profile image
Marie_14

Oh Noella, I am so upset for you. This is when I have problems with God! I will still pray to him but why, why, why? You have to tell your family. You are superwoman but time to hang the costume up now and let others take over. If nobody can or will then think of yourself and R. Go into a Care Home with him and then however long you both have you can spend it together.

My love to you dear lady and a great big hug. I will say those prayers because I don't know what else to do for you, apart from being here for you always.

Marie x

Noella21 profile image
Noella21 in reply to Marie_14

Thank you Marie. I try not ask questions there are no answers for. It makes you nuts. On the other hand why not me? Better people have had terrible lives. I am grateful for each day and the wonderful family I have. I lost my only sibling from a brain tumor at 27 she had two small children and was pregnant with her third. It was the worst of times it was the best of times. So many people supported us . When her baby was nine months old my sister died. I learned a lot about courage human kindness and myself during those difficult times. The children all grew up to be wonderful people. The baby became a high school teacher. How proud she would have been. He touches so many lives Never will she regret to have bought him time by waiting till he was born to start treatment. Their dad married again and had 2 more children. Those kids are all close. They all have children of their own now. It will be all right. The world goes on. God is still good. He can turn things for good even in this tops turvy broken world . We all have to die sooner or later . Loosing faith is much sadder than loosing your life.

Thanks for yor kind words. No need to feel sorry for me I just wanted to give you all a heads up in case you suddenly stop hearing from me .

Tippyleaf profile image
Tippyleaf

Thinking of you both. Do be honest with your family you need all the love and support you can get.

Take care and do be gentle on yourself even if you are super woman Love and hugs xxxx

Gracie_Girl profile image
Gracie_Girl

You are truly an amazing and the strongest woman I have ever know. You go beyond super woman. I'm sending huge (((((Hugs))))) and prayers to you both. God bless you and your family

Gracie girl ( Becky)

Katiebow profile image
Katiebow

This post is so difficult to read knowing you have been caring for R when you to are suffer from a terrible illness. I am full of admiration for you and can fully understand why you gave chosen to refuse treatment. I hope that you both manage to find a route that will let you be together as you take this heroic journey.

Love Kate xxx

Nanny857 profile image
Nanny857

Noella you are truly one amazing woman, keeping you and R in my prayers. Lots of love Nanny857xx

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