I am keen to find out if anyone receiving CHC gets an annual review of their funding using a Decision Support Tool.
We have just had a telephone call from a private agency contracted to the CCG to come round and complete a DST for Continuing Health Care. They seemed surprised that we were already in receipt of it and then said it must be a review. In other words they don't know, but they want the fee!
The Neat. Serv. Framework merely says the Care Plan should be reviewed annually.
Has anyone else had this.
(And yes the CCG seemed a little confused too!)
Thanks
Kevin
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Kevin_1
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Hi Kevin had 6months then annual (18 month) review after CHC start, both done by our senior DN with social worker. I have been expecting 2nd annual review ever since M moved into the nursing home but even the home are now asking me when was the CHC review due as 5 months in they have usually had a reassessment. My attitude is not to kick the sleeping dog and ask CHC team, just in case they decide to remove funding. In North Wales I understand still part of primary health board and not agency. As you say agencies tend to increase costs. Best of luck that they don't try and cancel your funding. Tim
So they do use a Decision Support Tool... This is an agency contracted in to get through the backlog.
Kick the sleeping dog... Good advice, though I'm afraid moving our funding channel across to Personal Budget Chanel has involved waiving some blunt instruments in their general direction already. We still get on - we have a CCG Nurse in our corner. She really cares and she's great.
Oh, well seems we are going to have to keep jumping the hoops then.
Sorry Kevin I should have said the DN and Social worker filled in a standard form with boxes with small descriptors and values. I assume this is a DST.
Our DN tended to go for third or fourth box with middling to high values, total giving yes/no for funding. According to our DN the text descriptor boxes are essential for giving panel more overview. I assume the DST is this form but may be computerised for ease of sharing.
Personal Budgets sound great, but not available in Wales, so interested in concept and how it works in England but think the dire state of health budgets in Wales chances it will not be coming here. But we do seem to have better coordination between NHS and local government care services so far.
Hi, what is CCG? not familiar with that. Our CHC funding has not had an official review, awarded last September. So perhaps we are due. We have had a couple of cost chats with the CHC manager, so whether they were reviews, I don't know. But she is working very hard to get me more help and keeps wanting me to have extra respite weeks. I can't imagine that there will be a problem from her. Well fingers crossed.
Our three month Fast Track review was nine months late.
There probably won't be a problem, for you or us either really.
Its a degenerative condition so if the scoring goes in and it is better than the year earlier then it should be sent back to the assessor as an anomaly. Remember it is the base condition being assessed and not the condition as it presents with care and an treatments in place.
I've read your posts, but not all of the replies. So I expect I am going to repeat some things her. Forgive me.
PSP tends to go in steps. The person wakes up and another step down in functioning has taken place. Sometimes it seems rapid and sometimes it plateaus and there is no change for a little while. The trick is to stay ahead of it with your planning and support.
Your Mum may need a live in carer very quickly, or to live with someone. She needs to get this in place well before. A big issue with P{SP is that sufferers do things which are high risk because they are poor at identifying the risks.
The route to Continuing Health Care (which is provided by the Clinical Commissioning Group) is through the G.P.
PSP is still rare. The GP may know nothing about it. You might like to ask the local PSP Association Rep. to come along to a meeting with the G.P. In my experience they are very good indeed.
Psp is degenerative so things will not have improved so I'm gathering it will be a tick box process they surely won't beable to remove your eligibility, just stress you do not need
I've perhaps read to much about what some CCG's do unlawfully. Scares the children!
And we depend on the funding so much.
We'll probably be OK.
I'll just need to sit down and complete a DST myself and then see if we can work on a collaborative approach in the assessment.
The problem I have is that we already get Fast Track we are in a process of moving onto the Personal Budgets funding channel which is subject to a different sort of Funding Panel and this process is suddenly coming up our tail pipes!
And to top it all the CCG Nurse - Who is brilliant does not know and the agency doing the assessment does not know why they are doing it.
All is forgiven Franz Kafka!
Thanks for your concern - Like all of us, we just need to weather this.
I don't understand all of the posts. We have just got CHC put in place and it started with a week in respite and then an hour each morning to help me get Geoff up and this Thursday I get a 12 hour night sitter. I filled in a form for Direct Payments but have not had a financial assessment yet so am clueless as to what happens next. Can anyone advise on this?
interesting! using an outside agency smacks of reducing costs, probably not even registered nurses.
my advice would be ring them asap they are legally obliged to give you a copy of the tool they use and the requirements for funding, ie what levels and how many you have to acheive.
they will be wordy documents usually called domains, if you are part of a local carers group theu will probably arrange for someone to be with you when assessment due.
They are qualified nurses - probably paid per piece of work. (No staffing overheads and no pension). The NHS quite regularly does this sort of thing when they are missing targets - which can lead to massive fines.
Yup, they have given me the tool and explanatory leaflets.
Where they are going to miss in terms of the regulations is that it will not disciplinary team.
Thanks for the suggestion of getting someone there. Good advice, but I'll be fine I am ex NHS myself and though I did not do CHC assessments or use that tool I have used very similar tools and have done more assessments than I care to count. Albeit in Psychiatry and not Phys. Health.
I talked to them again this morning and made them aware that we seem to be in two different funding streams simultaneously. I really don't want to kick this particular ball into play as we seem to have skipped this stage on the other funding stream.
Everyone is confused.
Thanks for coming back... I'm just stressed over it that's all... been hamerring on this door since March!
Exasperation - they continue to cancel the funding meetings. Last week I warned them that I would put a formal complaint in itemising their breaches of the regulations.
We do still get Fast Track funding and again we are seeking a respite placement, but everywhere is full.
We had it eventually 10monthw ago .. also had a three monthly now . Not heared anything so assuming it's still ok .
It's not fair it's a progressive illness and not going to go away . Ish they would leave us alone now .
Having got it has made a big difference to me I am less stressed mainly because we have better continuity of care and access to the OTs etc much quicker . .
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