I care for my dad with my mum!
I'm new to this site!
I hate PSP as I'm sure you all do!!
I'm sooooo tired and angry and upset and feel nothing but utter frustration that I cannot help my dad and can only watch him deteriorating
Of course we help dad with walking, dressing, showering, toilet visits (constantly), eating etc but why is there no bloody medication?????!!
Why doesn't anyone seem to know about Psp?
Why don't the authorities help more?
How do you get carers at home when you dont actually want them? You need them but you don't want them to look after the person you love cos they might not do it right?!!!
How are you supposed to look after yourself (like I keep being told) when you haven't got time??
Sorry I'm sooooooo frustrated!!