Okay. Before I was diagnosed with PSP, I was accustomed to mild or moderate tremors in my hands. Decided to be sneaky and tried to hide it.
Over time, my tremors have evolved into whole body tremors that can last for hours and leave me exhausted. I've been told these are A-typical; These do not happen everyday but seem to come in waves. If that start one day, seem to stick around for 3 or longer.
I'm also accustomed to tremors in both my upper and lower eyelids. That's a daily thing. Have a Botox consultation coming up.
But a new? or a new area? of tremors started one day this week w/o warning and never had happened before. I lost all control over my facial muscles; it's went on for 3 hour straight. My girls were sitting with me and thought I was joking at first...but it soon became clear to them, my facial contortions were involuntary and I had no control over it. It was constant and a bit extreme. I finally took a muscle relaxer and it quieted it a bit.
Have any other persons with PSP experienced this and/or the Caretakers of persons with PSP observe this?
Really caught me off-guard. Would appreciate feedback. Don't know what to make of it except I wouldn't go outside with this type of tremor; seriously.