PSP Association | HealthUnlocked

After a month long fight in hospital my wife could not fight any longer. Yesterday afternoon I removed her oxygen mask and lay with her as she drifted away....

My wife first went to hospital in early 2020 with a soft voice and her face looked as if she had had a stroke, in March 2022 she wrote an email to me which I...

Hello has anyone had CHC funding removed because they see the needs are managed ?We are due for a review and there was a veiled threat last time. It's such a...

Hi only just joined this group and was hoping for a little information/ advise. My mum has psp and is now choking on everything she tries to eat and drink. My...

Mum was only diagnosed with PSP last Octobershe is falling alot more now and ,her speech has really got very bad over the past month and I just wondered if...

A bit of fun for a good cause. You have to watch the video - sorry! https://youtu.be/sTjJA8bBIY8 We have Tim Brown (Daddyt on this site) to thank – he...

Is anyone watching This Morning with the Salt Path couple?!

This is the first time I've posted. I live in California and heard about HealthUnlocked so thought I'd give it a try. My husband of 53 years has been...

My mum has double vision ,one on top of each other not side to side ,she has a real problem with sunlight Has anyone heard of glasses you can get ? Concerned...

Hello everyone. It's not often I post here, however I read lots of the posts and take comfort in this community. My Mum was diagnosed with PSP in 2018. She now...

After 4 years of pushing him, pushing for tests and watching a 6 foot plus ex Royal Navy football/rugby player fall, loose the use of his right hand and leg,...

Hi, My husband drinks plenty of fluids and is hydrated but has inconsistent but increasing episodes of urine retention. He may go every few hours one day but...

Please could I ask if anyone has experience of surviving on liquid meals only. My 64 year old husband has PSP and is in advanced stages. He does not want to...

My mom, who had PsP, is now a star in the sky. The last stage was brutal. her husband and kids were there with her for this journey and we try and console...

My husband (diagnosed with PSP July 2021) loves his food but lately eating has become a problem. Meals can last over 2 hours as chewing and swallowing are...

My wife was diagnosed with PSP some 3 years ago and is now suffering regular pain and spasms in her legs, she is on Co-Caroldopa 4 times a day and our GP as...

Has anyone tried speech production technology, such as Stephen Hawking used, for PSP patients? Was it successful or not? Our speech therapist is asking us to...

my husband is 72 and was finally diagnosed with PSP in September 2023 after a steady decline for sometime in his mobility. His speech is slurred and difficult...

my mum is now having to be given fluids using a syringe 😭 drinking from a cup she can’t keep the fluid in her mouth it just runs out like she has no control....

Hi Karol has had a dry mouth since having peg fitted and nil by mouth for fluids . However he has started drooling a lot this week and I wouldn’t say clenching...

my mum was diagnosed with PSP 3.5 years ago, and it has progressed so so quickly, i wonder where the time has went, it is unfortunate now that she has been...

Hello this is my first post. my brother lives with me and he has always had complex needs. Diagnosed with CBD in 2021 but symptoms since 2018. Off his feet...

Hi, This is my first post. My mum was diagnosed in March 2021 with PSP. I just wanted to share this link to see if anyone else had read this....

I meant to say I don’t know if this is because I answered No to the question can your husband wash, dress and feed himself. In 2022 when we took the policy out...

A friend of mine was diagnosed with CBD last year, but started with symptoms about 4 years ago. It started in her left hand, she lost control and dropped...

Hi everyone, my Dad is in the later stages of PSP, his speech has pretty much gone apart from the very occasional word, he’s now in a wheelchair and is...

my wife was diagnosed yet, she is meeting next week to discuss different meds, does anyone have any recommendations or experiences that might want to share...

Wife recently diagnosed with CBD. Lost use of 1 arm, other one is less under her control. Balance is variable. Looking to travel to Spain. Any...

hi This is my first post, my husband 79 was diagnosed with PSP 18 months ago. My biggest frustration and upset is his apathy and lack of communication. We can...

I am a Carer for my husband who has been diagnosed with this condition in November 2023 (PSP)