I was diagnosed with prostate cancer, Gleason 8, no indication of metastasis in January. I just had a radical prostatectomy, including the removal of nerves. Post surgery pathology downgraded the two legions to a Gleason 5 and a Gleason 7, with no indication of any cancer touching the anterior wall.
I have to wait three weeks before taking my first PSA, but it is my understanding that if I don't drop down to a completely normal level (1-4), my doctor will recommend a treatment of radiation and hormone therapy.
I've been reading a lot about hormone therapy and it's overwhelming. From what I can glean, even short-term hormone therapy has the effect of:
- chemical castration
- shrinkage of testicles to the point they cannot be felt
- shrinkage of the penis
- hot flashes
- weight gain
- tender breast tissue and breast growth
I'm having a hard time wrapping my mind around this. I also feel like I've been strung along - that doctors have held back on some of these symptoms, probably to ease the blow of this very emasculating process.
Had I known all of this before hand, I might have made a different set of decisions. And I'm pissed it didn't have all the info.
Can those of you who have experienced this path give me any information - physical and psychological - that might be helpful?
You should be waiting 3 months for your first PSA, not 3 weeks. At 3 weeks you will still have PSA from the prostatectomy in your blood.
You should have started penile rehab by now.
You didn't answer my question.
It is always best to stay in the present moment. "What if's" serve no purpose other than to create anxiety.
That's a load of bullshit.
It also smacks of authoritarianism. Don't look ahead and do what you're told.
If you want to worry yourself sick, it's your life. Most of us have learned to take it one step at a time.
Your attitude is condescending and superior. And you're also incorrect in assuming that everyone need not know what happens next. I don't care to engage with you ever again.