Hello all
I have been on ADT for 4 years - every 3 months. Up to last time it was Lupron. Last injection was end of Nov and I complained about side effects - especially fatigue, leg weakness and especially the hot flashes. They switched formula to TREISTAR (triplorelin). At first I found some relief but for the last six weeks I am finding the hot flashes are increasing in frequency - more than a few a day and several during the night - much more uncomfortable. It's like they come in waves.
I see the Dr on Feb 26 for next injection. Any thoughts or suggestion of other formulas with less side effects. I will definitely go back to Lupron if there are no other options.
My Dr (oncologist ) whom I respect and will stay with, said 6 months ago: " usually people on ADT - sooner or later - have a failure of effectiveness. You (me) seem to be one of those lucky ones for whom it is continuing to be effective - so lets stay with ADT. "
PSA >.003 first diagnosis of 5 - 7 years ( I had 340 PSA and mets, has been changed to: " we are not talking about survival rates - forget years - it may be decades and something else will get you. ( I am 72 1/2 - that would put me in my 90s ... really ? )
thanks
Best to all
PJD
I am on Abiraterone and Degarelix (generic for Firmagon) I have so far had fewer side effects than when I was on Lupron years ago. However the hot flashes were horrible keeping me awake at night and making me dizzy during the day. I had found gabapentine to be effective against hot flashes in the past but prefer to minimize my pharmaceuticals.
My oncologist prescribed megestrol acetate. I have been taking this twice a day but have also been taking fairly high doses of high CBD cannabis oil at night so I don't know which is most effective against the hot flashes. As a test I stopped the megestrol for two days and hot flashes came back but not at all like when they were bad. So I started the megestrol again and plan to continue the cannabis.
thanks for that info I will do a little reading on those things. I use cannabis and find it very beneficial. I will bring this info to my meeting with the Oncologist - considerations for alternative formulas
Best to you
PJD