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Low T after one year off ADT/ Radiation. Undescended testicles at birth. Psa undetectable

Chasu profile image
6 Replies

I have been off ADT for one year. My 3+4 gleason score Pca was treated with 44 radiation treatments and lupron. My T has gone from 5 to 30 in 6 months. My uro will not give T supplementation ok as yet. My endocrinologist says I have had hypogonadism since undescended testicles operation at 10 ( I am now 75).I had had chronic lowT probably lifelong. .15 years ago I tried T injections but they raised my psa to over 4 which prompted a biopsy and score of 3+3. That score changed a bout ayear ago to 3+4. Since then I have had sife effects galore from ADT/ Radiation of course. Sarcopenia hot flashes, no libido or energy ,depression, Shrinkage etc. I have tried to communicate all this to my mo and uro but they dont seem to even consider T treatments. My question is: am I crazy to think I should have the T treaments? My psa has been undetectable so far.

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Chasu profile image
Chasu
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Tall_Allen profile image
Tall_Allen

I don't understand why you had ADT in the first place - seems like overtreatment.

T replacement therapy (TRT) has been used in some men after successful RT. You can discuss these studies with your doctor:

auajournals.org/doi/10.1016...

nature.com/articles/s41391-...

Chasu profile image
Chasu in reply to Tall_Allen

Thanks I will. It seems I had a " cookie cutter" approach. Wish I knew then what I know now from this forum.

Horse12888 profile image
Horse12888

You may have to get a new doctor, but you will definitely find one who will administer TRT. If my T hadn't recovered after ADT, I would have had TRT in a heartbeat.

Steve507 profile image
Steve507

Hi,

I have extreme low T and wonder the same about supplements. My PSA is 0.005. My energy is a bit low but no issues in achieving wood.

Chasu profile image
Chasu in reply to Steve507

Good for you! I'm still shrinking after a year like 1/2 size and on cialis daily with mediocre results

I chose not to use the supplement after my dr prescribed it. Chicken I guess. I finished my 40 rounds of RT in April of 2019. Also had lupron and zytiga for 20 months stopping Feb 2020. July of this year I broke 100 and it started moving to 298 Last month. It goes up and down.

I wish I had the nerve to take the Testosterone but my tumor had invaded my rectum and I had other drs say no to

me. So I’ll just hope it keeps going. I was definitely miserable from the fatigue.

However with me a lot of the fatigue turned out to be related to high glucose and an A1c of 10. Had no idea until I started peeing all the time. Low T can cause or add to type 2 diabetes.

I suggest everyone dealing with fatigue have their A1C checked.

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