Well, my life will be changing shortly. I am a very healthy 72 years old (everyone thinks I am in my 50's and doctors are always amazed at my vitals). Very active in sports and sex. Weigh 168, 5/10. Biopsied months ago after an MRI indicated a large tumor with 'possible' microscopic extension outside the capsule. Bone & CT scans are clear. Gleason 3+4, 12 out of 15 cores positive, 34 gram prostate. PSA under 7, Stage 2 intermediate. Working with MD Anderson in Sugar Land near Houston. I'm torn up over this because I have been so healthy and sexually active - hetero sex being a VERY important part of my life. Hormone treatment and ERBT seems the greater of two evils for me and I have opted for surgery coming up in a week. But, this site (and Tall Allen) has clued me in to the SBRT Cyberknife option and I contacted St. Luke's, the only hospital in Houston doing this procedure, and am waiting for an appointment to visit with them. My fear is that the possible microscopic extension outside the prostate will render me a poor candidate for SBRT. Any thoughts on this?
Also, another question - if I choose to do nothing at all how long can I expect to be pain free from metastatic bone cancer and what might be my life expectancy?
Thanks very much for sharing any thoughts with me.
If they consider you to be stage T3a because of the microscopic extension (ECE), they may regard you as high risk and refuse to treat with SBRT. But, I would argue that MRIs are notoriously poor at identifying focal ECE, and SBRT treats a margin outside of the prostate anyway. My RO, Chris King, has a clinical trial for SBRT for high risk patients, which, he tells me, is going quite well.
If they won't treat you, Steven Frank at MD Anderson may agree to treat you with seeds plus some external beam radiation. Not a bad idea to schedule an appointment with him.
Thanks for the reply, Allen. Is your RO accepting any more patients into his trial? Alternatively, do you think he might accept me as an SBRT candidate outside of the trial?
I don't think he would consider you high risk, but you can certainly ask him. His high risk trial is ongoing, and he is accepting patients, but I think he would just give you the same treatment he gave me. Chris King (424) 259-8777 in Santa Monica.
Well, it was difficult to say goodbye to MD Anderson and their surgical team but I cancelled my upcoming surgery as I have been accepted as a patient with St. Lukes in Houston. Dr. Jhaveri has agreed to treat me with SBRT after I have an MRI and placement of fiducials in the prostate which will happen in 1 week. I have met with several urologists, three RO's, and two surgeons prior to finding this blog and discovering about SBRT. Thanks a lot, Allen, for your concern and ongoing effort to educate those of us who hardly knew what a prostate was before being told we had cancer. I know a whole lot more now and appreciate it. I feel very comfortable and at ease with my decision. Weird thing is that not one of the many specialists I consulted with ever mentioned SBRT as an optional treatment program including MD Anderson. I will update as I go through the process.
Although MD Anderson offers moderately hypofractionated IMRT, and LDR brachytherapy, they never offerred SBRT for prostate. Like Johns Hopkins and Mayo, they never really focussed on building their radiation oncology departments. I guess they put their focus on surgery and medical oncology.