Have you completed the nine-question ... - Prostate Cancer N...

Prostate Cancer Network

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Have you completed the nine-question (5-10 minute) anonymous prostate cancer survey? Please Click here: https://bit.ly/3fUZAcu

Darryl profile imageDarrylAdministrator59 Voters

Please select one:

13 Replies

Where's the link to complete, plz?

Darryl profile image
DarrylAdministrator in reply to Steve507

bit.ly/3fUZAcu

Darryl profile image
DarrylAdministrator in reply to Steve507

bit.ly/3fUZAcu

don't see the survey

Darryl profile image
DarrylAdministrator in reply to pjd55d

bit.ly/3fUZAcu

I didn't like any of the options in question #5 but there is none of the above.

Which of the four paragraphs motivates you the most to find out more about Nonprofit X?

Darryl profile image
DarrylAdministrator in reply to Murk

Thanks for sharing that. We will include your comment (anonymously)

bud_manning profile image
bud_manning in reply to Darryl

ditto what Murk said. The platforms were too vague. I wanted " ( E ) none of above" on all those questions. I did complete it reluctantly on the third attempt.

Darryl profile image
DarrylAdministrator in reply to bud_manning

What would the "platform" say if you could write a choice you would have selected?

bud_manning profile image
bud_manning in reply to Darryl

I tried to answer that question at the end for them. I believe what is needed is someone to sort through, sort out, all the information out there and put together a guide to prostate cancer, worded in common language, to explain and inform: diagnosis, Gleason, testing, and treatment options. Explain AS, ADT, SOC, chemo and radiation. Answer all the questions scared people get on these support sites asking. the guide would take them through the stages, what to expect, options and treatment.The guide would also cover the unconventional therapies: off-label drugs and supplements that are proven to have anticancer properties, or that enhance the effectiveness of or limit the side effects of chemo and radiation. All entries here would be verified by three reputable sources. Also included would information on current research, such as looking at disrupting cancer metabolism, starving, weakening it so SOC is more effective.

I even suggested they talk to advanced, mCRPC people about what we know now that we wished we knew back at the start.

This guide would be published on a free access website with review by NIH, and or major cancer institutes such as Johns Hopkins. All patients to urology or oncology would be made aware of the site.

Did I answer your question?

Darryl profile image
DarrylAdministrator in reply to bud_manning

Thanks

Darryl profile image
DarrylAdministrator in reply to Murk

What would the "platform" say if you could write a choice you would have selected?

Survey completed