Son 20+admissions chest related getting nowhere fast!
Rorojackson in British Lung Foundation 2 months agoPOPULAR
Hi, my son is seven he has had 20+admissions to hospital for his chest, I have just applied for and received his hospital records. He has had...
Nearly time to go folks
Stevieboy03 in British Lung Foundation 6 months agoPOPULAR
Well it seems thats me nearly done folks... ive already proved them docs wrong twice but i dont know how much more i can do that.....
Sandydemop in My MSAA Community 5 months agoPOPULAR
Hi everybody, I could use some ideas from experienced people. I have a $4000 deductible on my new insurance and am running low on Copaxone....
The fight is over.
Fightingwithdad in CLL Support Association 2 months agoPOPULAR
Sadly, after an amazing, courageous fight, my Dad passed away yesterday. His eighth bout of pneumonia was too much for him, and he died peace...
New information to help from getting flares
jan422 in British Lung Foundation 6 months agoPOPULAR
My husband saw a new specialist and he recommended Z-tab three days a week Daliresp and 2 new medicines for the nebulizer twice a day. brovan...
My heart is breaking
Debbieann in PSP Association 9 months agoPOPULAR
Because of the PSP, Fred was unable to fight the aspiration pneumonia, he passed away at 10.30 this morning, unfortunately in hospital, but I...
Cathy616 in My MSAA Community a year agoPOPULAR
Has anyone taking Copaxone found that the back of the arms and the back of the hips are difficult? Any suggestions on how to inject, manually...
Mogi2002 in PSP Association 8 months agoPOPULAR
My father he had his fist aspiration pneumonia. We had to do the PEG, since he failed the swallowing test....
Fionafish in British Lung Foundation 3 months agoPOPULAR
Hi everyone, got a chest infection a while back, doctor prescribed Amoxycillin then after a week Co-trimoxazole, and then when it still did n...
On a lighter note.....
Georgepa in PSP Association 3 months agoPOPULAR
Yes even in the darkest times there is always a chink of light so I think it is beholden of me to tell you of my exploits on a mobility scoot...
Teeth Cleaning & Update
Gadgetgeek in PSP Association 8 months agoPOPULAR
In other news G had a PEG fitted on Wednesday, the surgeons allowed me into theatre with her which was brilliant and totally fascinating. So ...
Deni52 in British Lung Foundation 6 months agoPOPULAR
Any do's and don'ts for 64yr old with pneumonia?? I'm usually fit so feeling a bit yuk at the moment any advice getting through this would be...
Anyone 18 yrs old and taking Copaxone?
My daughter will start Copaxone soon. She was just diagnosed in June and I was wondering if anyone her age was on Copaxone too and how you're...
Traveling with cll
Grandmajoanie in CLL Support Association 8 months agoPOPULAR
Hello everyone, I am wondering about traveling on a plane and all it entails what with people All over and maybe carrying what illnesses,who ...
Patient survey - IPF/ILD
Ben_BLF in British Lung Foundation 15 days agoPOPULAR
Hi all, IPF Week is coming up in just under two weeks ( 16-24 September ), and as always we’ll be spending the week raising awareness of IPF ...
New here and love the positivity
latellama in My MSAA Community 8 months agoPOPULAR
I was diagnosed in November withRRMS and am still on medical leave from my work as an instructional coach in elementary school. I have PT, OT...
Improving O2 levels
revagayle in British Lung Foundation 6 months agoPOPULAR
I wonder if anyone has had any success with improving their O2 levels with regular exercise and/or regular breathing exercises. Thanks, Gayl...
btown in British Lung Foundation a year agoPOPULAR
Had my flu jab today, don't forget yours it's very important also had pneumonia jab so please get your if you are due. 😀💉...
Don't want to go on 24 hr oxygen
joke in British Lung Foundation a month agoPOPULAR
Well looks like I am going down the wrong road! Am trying to limit my time on the oxygen....
New to this page
Njjack1 in My MSAA Community 2 months agoPOPULAR
I am a 54 married male with 6 kids and who has had an extremely active lifestyle. In my employment i am CEO of a large non- profit disability...
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