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PMRGCAuk

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Spring COVID vaccination

Hi all, I was told when I was diagnosed with PMR last year that the condition would mean I was immuno-suppressed. Consequently I thought I would be entitled...

Hi all, I was told when I was diagnosed with PMR last year that the condition w...

Hedgehogfriend

•6 days ago

21 Replies

Chest pain

Hi all, I'm 52 and recently diagnosed with Sjorgen's syndrome and possible PMR... shoulder, leg & hip pain. I was put on 15mg of prednisolone for four weeks...

Hi all, I'm 52 and recently diagnosed with Sjorgen's syndrome and possible PMR.....

Soinoi

•17 days ago

33 Replies

Just been diagnosed with PMR 3 weeks after having Gall Bladder removed??

I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm, wrists, hips & thighs. Taking 15mg of Prednisolone & will be starting Cali-D...

I’ve just been diagnosed with PMR after 3 weeks of severe pain in shoulders, arm...

Shadowboxes

•20 days ago

13 Replies

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Any advice on questions to ask GP at review of 1 week prednisolone trial?

I’ve just done 1 week trial on 15mg Prednisolone (which has eased symptoms of PMR to some extent). GP will call tomorrow to review and presumably come up with...

I’ve just done 1 week trial on 15mg Prednisolone (which has eased symptoms of PM...

Preposterous

•1 month ago

55 Replies

Help with timing of split Prednisolone dose

Hi, I have found this site amazingly helpful, thank you. I have a specific enquiry regarding the best time to take my split dose. When my rheumy advised...

Hi, I have found this site amazingly helpful, thank you. I have a specific enqui...

Tribie

•2 months ago

25 Replies

polymiagle 1943

i am not very good with this site. as I cant seem to find my way around i couldn't find replies to my last post. so just look at post written in by other...

i am not very good with this site. as I cant seem to find my way around i couldn...

Polymiagle1943

•2 months ago

3 Replies

RSV vaccine?

Hi all! Is there any reason that I might want to avoid the RSV vaccine with my PMR? I also have delayed getting the most recent covid booster since I had covid...

Hi all! Is there any reason that I might want to avoid the RSV vaccine with my P...

Spartans1

•3 months ago

7 Replies

New Member

I am a very active person and had never heard of PMR. My first sign of an issue was a big one and quite strange. I had just spent 8 straight hours driving...

I am a very active person and had never heard of PMR. My first sign of an issu...

NCStateLine

•3 months ago

42 Replies

it's back

After over 5 years with no symptoms, PMR and GCA have suddenly returned. Dr has put me back on steroids, so here we go again. Nobody seems to know why this...

After over 5 years with no symptoms, PMR and GCA have suddenly returned. Dr has ...

Content1

•3 months ago

37 Replies

PMR or Ankylosing Spondylitis

PMR or Ankylosing Spondylitis Hi. I was diagnosed in Sept 2023 with PMR. This was after many telephone consultations and each time having been prescribed...

PMR or Ankylosing Spondylitis Hi. I was diagnosed in Sept 2023 with PMR. This...

Freelabour

•3 months ago

4 Replies

steroids and osteoarthritis

I have finally reduced my prednisolone to 2mg, from 25mg. It has taken a log time, but I am coping with the pmr. But now, I'm told the steroids have caused...

I have finally reduced my prednisolone to 2mg, from 25mg. It has taken a log ti...

Linbin1

•3 months ago

15 Replies

Myasthenia Gravis

I have been on prednisolone for almost 2 years for Polymyalgia Rheumatica (GP Diagnosis) but over the last year I have been losing strength and other...

I have been on prednisolone for almost 2 years for Polymyalgia Rheumatica (GP Di...

opentuned

•3 months ago

5 Replies

Den73

Evening my latest blood test have revealed I am pre-diabetic.....I have never suffered with diabetes, so have been told it is due to Predneslone, and the hope...

Evening my latest blood test have revealed I am pre-diabetic.....I have never s...

Den73

•3 months ago

24 Replies

Steroid dependency? Tapering problems.

Diagnosed with PMR 6 years ago and been on steroids ever since. Been on 4 mg pred for last couple of years but unable to reduce as symptoms return at less. I...

Diagnosed with PMR 6 years ago and been on steroids ever since. Been on 4 mg pre...

Enemyofthestate

•4 months ago

26 Replies

Great PMR forum

Almost 4 years ago I got the diagnoses of PMR. Had never heard of it before although I worked in medical research. Now since more than one year on Prednisolone...

Almost 4 years ago I got the diagnoses of PMR. Had never heard of it before alth...

GrandmaPirate

•4 months ago

2 Replies

Update: When PMR is RA

Evening everyone, Just to update, after seeing the Rheumatologist, Dr Camilleri, in Cardiff on Wednesday, and armed with every test result over the past...

Evening everyone, Just to update, after seeing the Rheumatologist, Dr Camilleri...

Hopeful66

•4 months ago

40 Replies

terrible metalic taste in my mouth ALL the time!

I’m now into my second year of PMR, I’m on 5mgs of Prednisone and 20mgs of somac a day, 50mgs of Endep at night. I don’t think I have changed anything in my...

I’m now into my second year of PMR, I’m on 5mgs of Prednisone and 20mgs of soma...

Heidiypi1

•4 months ago

2 Replies

Help please. Currently been given advice to go from 2mg Pred up to 40mg! Very worried. Advice please.

Hello, Last February my mother 84 was diagnosed with PMR.Her starting dose was 15mg. Gradually tapering successfully... And now after 9 months she's had a set...

Hello, Last February my mother 84 was diagnosed with PMR.Her starting dose was 1...

Poppy_the_cat

•5 months ago

10 Replies

Newly Diagnosed Polymyalgia

I am a 57 year old female living on a smallholding in the Welsh hills. I have historically suffered on/off back pain that tended to travel between my lumber...

I am a 57 year old female living on a smallholding in the Welsh hills. I have hi...

Hopeful66

•5 months ago

48 Replies

Did Covid trigger my GCA?

In October last year I caught Covid for a second time. I wasn’t very ill and it only lasted a week. But, 3 months later in late January I was diagnosed with...

In October last year I caught Covid for a second time. I wasn’t very ill and it ...

Handloomweaver

•7 months ago

8 Replies

Rheumy

Hi once again pmr (or is it ?) Colleagues. Well the journey continues, but after seeing my second rheumy, I'm not sure in which direction. After the first...

Hi once again pmr (or is it ?) Colleagues. Well the journey continues, but afte...

Cromboy

•7 months ago

18 Replies

Small vessel disease relagionship to GCA and PMR

After numerous tests over the last couple of months, including pet scan and mri I have now been diagnosed with Cerebral small vessel disease. My symptoms are...

After numerous tests over the last couple of months, including pet scan and mri ...

shazstep

•8 months ago

6 Replies

Human monocyte-derived suppressive cells (HuMoSC)s in GCA treatment, (lab stage only, but maybe steroid sparing hope for future generations)

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9989212/ The experts here have no doubt already read this paper, published in Feb 23. I think the work was done...

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9989212/ The experts here have no ...

Dochaz

•9 months ago

3 Replies

Hip replacement

Hello I think I have to have a hip replacement. I find it hard with polymyalgia to move my legs without stiffness even with the steroids. So I'm wondering if...

Hello I think I have to have a hip replacement. I find it hard with polymyalgia ...

Hidden

•9 months ago

29 Replies

Ankle Surgery and Rehab

Hi everyone. I'm having another ankle surgery on August 18th and am lucky in that I have the same surgeon, James Brown, that did my other ankle. I've had...

Hi everyone. I'm having another ankle surgery on August 18th and am lucky in th...

discoballs

•10 months ago

Be the first to reply

Groups more susceptible to PMR?

I recognise that this will be of little interest to most but I wondered if there had been any research into which groups were more prone to PMR than others....

I recognise that this will be of little interest to most but I wondered if there...

51Highland

•10 months ago

134 Replies

Diagnosed yesterday with GSA

Started with severe temple headaches on Sunday, lost eyesight for a couple of minutes. Doctor sent me to accident and emergency , diagnosed with GSA and put...

Started with severe temple headaches on Sunday, lost eyesight for a couple of m...

Doublef

•10 months ago

11 Replies

Red Blotches

I've had this before! Red bruise blotches on my arms. They are varying sizes from pinprick to a quarter of an inch. I'm stuck on 10mg of Pred I get them...

I've had this before! Red bruise blotches on my arms. They are varying sizes fro...

discoballs

•10 months ago

11 Replies

Disease stratification in GCA and PMR: state of the art and future perspectives, published on 12th June 2023 in Nature Reviews, rheumatology

I can't access the whole article because I'm not a subscriber, but the abstract is interesting nonetheless https://www.nature.com/articles/s41584-023-00976-8...

I can't access the whole article because I'm not a subscriber, but the abstract ...

Dochaz

•10 months ago

22 Replies

Bruising on legs

I have been on medrol now for 8 years. I’m down to 3mg. I have experienced easy bruising on my legs they have lead to severe wounds. I now wear compression...

I have been on medrol now for 8 years. I’m down to 3mg. I have experienced easy ...

smoothilly

•11 months ago

3 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

All things PMRGCAuk posts

Spring COVID vaccination

Chest pain

Just been diagnosed with PMR 3 weeks after having Gall Bladder removed??

Any advice on questions to ask GP at review of 1 week prednisolone trial?

Help with timing of split Prednisolone dose

polymiagle 1943

RSV vaccine?

New Member

it's back

PMR or Ankylosing Spondylitis

steroids and osteoarthritis

Myasthenia Gravis

Den73

Steroid dependency? Tapering problems.

Great PMR forum

Update: When PMR is RA

terrible metalic taste in my mouth ALL the time!

Help please. Currently been given advice to go from 2mg Pred up to 40mg! Very worried. Advice please.

Newly Diagnosed Polymyalgia

Did Covid trigger my GCA?

Rheumy

Small vessel disease relagionship to GCA and PMR

Human monocyte-derived suppressive cells (HuMoSC)s in GCA treatment, (lab stage only, but maybe steroid sparing hope for future generations)

Hip replacement

Ankle Surgery and Rehab

Groups more susceptible to PMR?

Diagnosed yesterday with GSA

Red Blotches

Disease stratification in GCA and PMR: state of the art and future perspectives, published on 12th June 2023 in Nature Reviews, rheumatology

Bruising on legs

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