Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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my journey

Hi everyone, thought it was about time I shared my story My journey began Easter 2024. It all started when I couldn’t open my mouth wide enough to get the...

Hi everyone, thought it was about time I shared my story My journey began Easte...

TempleNI

•4 hours ago

7 Replies

DEXA and Leaky Bowels

Two questions for my knowledgeable chums. I was diagnosed in November 2023 and after a battle with my GP managed to get a DEXA scan in early April. Results...

Two questions for my knowledgeable chums. I was diagnosed in November 2023 and ...

ChrisBeeLoop

•8 hours ago

2 Replies

how does overactivity impact on PMR & GCA?

I was steady on 5 mg for 6-8 weeks and on 3 different occasions tried to drop to 4 and a half mg. Unsuccessful on all attempts and as I felt stiffness...

I was steady on 5 mg for 6-8 weeks and on 3 different occasions tried to drop t...

Albyn32

•10 hours ago

9 Replies

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Doing ok

When I finally went to see the GP back in early August after a long slow recovery from Covid at the start of the year, my shoulders, upper arms and legs felt...

When I finally went to see the GP back in early August after a long slow recover...

LittleJane

•10 hours ago

5 Replies

RSV vaccination

Hi all. Can those of us on long-term prednisolone safely receive RSV?Thanks 😊

Cinka

•13 hours ago

11 Replies

Dreams

I don't know if it's the PMR or the Prednisolone but I have been having long, involved and vivid dreams. Nothing like the dreams I normally have. Anyone else...

I don't know if it's the PMR or the Prednisolone but I have been having long, in...

LittleJane

•13 hours ago

12 Replies

Flu and covid jabs

I am at a PMRGCA local group meeting and a new lady asked if she should have the flu and covid jabs, separately, as she had pneumonia after her joint covid and...

I am at a PMRGCA local group meeting and a new lady asked if she should have the...

Nagswoman

•15 hours ago

5 Replies

Fatigue

Hi everyone The last few years have been a bit of a mare. Diagnosed with Celiac (2021) followed by GCA (2022) and now Polymyalgia. I've managed to cope...

Hi everyone The last few years have been a bit of a mare. Diagnosed with Celia...

TeddyCR

•15 hours ago

17 Replies

ESR reading

When I was diagnosed 7 weeks ago my ESR reading was 28 and marked in red as abnormal. My CRP was marked in green as normal. The GP who asked for these tests...

When I was diagnosed 7 weeks ago my ESR reading was 28 and marked in red as abno...

LittleJane

•15 hours ago

13 Replies

Newbie

Thank you so much to everyone for your replies. It certainly shows what a different experience it is for each person. The site is very helpful and I will keep...

Thank you so much to everyone for your replies. It certainly shows what a differ...

NewPMR

•16 hours ago

1 Reply

Under new management, Hastings and Rye support group

Owing to other commitments Caroline has handed over the Hastings Support group to me and I am planning to meet very soon in Hastings for any folk in the...

Owing to other commitments Caroline has handed over the Hastings Support group t...

Zebedee44

•16 hours ago

3 Replies

Added to my Bio

Good morning everyone, just to say I have added to my bio as I didn't share much to start. I am slow to trust things, it's just how I am . Love Jane x

Good morning everyone, just to say I have added to my bio as I didn't share much...

LittleJane

•17 hours ago

7 Replies

So much help

Each morning I look at the forum and there is so much help from others sharing their experiences. I've only been diagnosed 7 weeks today so am really new to...

Each morning I look at the forum and there is so much help from others sharing t...

LittleJane

•17 hours ago

22 Replies

Zoom or physical monthly meetings; great information and discussion!!

This morning, I met via Zoom with the support group I attend monthly. It was terrific 'being with others face to face.' This meeting starts at three PM~ BST...

This morning, I met via Zoom with the support group I attend monthly. It was ter...

Grammy80

•23 hours ago

8 Replies

OK Several days in and many more questions

Saw hospital consultant Monday. Many repeated tests from those Specsavers Saturday before last. He had the Urgent blood test results done at hospital the...

Saw hospital consultant Monday. Many repeated tests from those Specsavers Satur...

Nonameme

•1 day ago

10 Replies

Gastritis, PPI’s and Methotrexate, a new chapter on the joys of PMR/GCA.

Hi all, Just read something that, at least for me, cleared up a puzzle. Since November 2023 suddenly I experienced belly aches that would wake me up, 4-5...

Hi all, Just read something that, at least for me, cleared up a puzzle. Since...

Omakaat

•1 day ago

12 Replies

GCA flare or not.

Saw rheumatologist today.2 weeks ago GP upped pred from 8mg to 40mg for 1 week because of temporal and jaw pain. GP did urgent referral to rheumatologist...

Saw rheumatologist today.2 weeks ago GP upped pred from 8mg to 40mg for 1 week b...

Esmeruth7

•1 day ago

15 Replies

GCA/pmr flare?

I’ve been trucking along pretty well since 2022. Currently at 4mg pred and 15 mg MTX, both CRP & ESR have been fairly consistent within range. I’ve been at...

I’ve been trucking along pretty well since 2022. Currently at 4mg pred and 15 ...

Cfmad298601

•1 day ago

4 Replies

Newbie

I’ve just been diagnosed with PMR and am on my first week of steroids. I am very anxious about taking them and the potential side effects. They have helped...

I’ve just been diagnosed with PMR and am on my first week of steroids. I am very...

NewPMR

•1 day ago

49 Replies

esophageal candidiasis

went to doctor complaining of stomach pain. Did endoscopy they found erosive gastritis and also esophageal candidiasis. Please, does it mean I’m hiv positive....

went to doctor complaining of stomach pain. Did endoscopy they found erosive gas...

Justinlo

•1 day ago

2 Replies

To PMRGCA volunteers/members

I just need to say thank you to this community of volunteers/members who are replying to my questions etc. I am brand new to this community, but you all...

I just need to say thank you to this community of volunteers/members who are rep...

1988jtb

•1 day ago

9 Replies

Could this be my PMR changing to GCA?

Hi, I have reduced from 15 mg from last October and now down to 5. i have been extremely well mostly and nearly looking at reducing by 10%. For the last week...

Hi, I have reduced from 15 mg from last October and now down to 5. i have been ...

Sungolfer

•1 day ago

18 Replies

A flare and cutting down

Hi All Sorry to bother you all again but you have been so helpful to me this week, as advised I upped my steroid to 25mg I think this was on Sunday, sorry...

Hi All Sorry to bother you all again but you have been so helpful to me this we...

Mumdadlove

•1 day ago

11 Replies

Tapering and vaccinations

After reading some posts, am I right in thinking it would be best not to begin my slow taper until after I have had my flu jab on 10/10 and Covid jab on 16/10?...

After reading some posts, am I right in thinking it would be best not to begin m...

LittleJane

•1 day ago

31 Replies

Advice re flu jabs

What is the thinking about steroid doses when you are booked for a flu jab. I have mine on Monday!! I am currently tapering from 20mg to 10mg with the taper...

What is the thinking about steroid doses when you are booked for a flu jab. I h...

VickySponge

•2 days ago

10 Replies

PMR/GCA -Trouble with First Taper

Thank you all for replies. Really need guidance, as doctor is often hard to reach. I seem to be having alot of trouble with my first taper. As I mentioned...

Thank you all for replies. Really need guidance, as doctor is often hard to reac...

1988jtb

•2 days ago

15 Replies

Covid and Flu Injections

Hi everyone.After PMA hit October 2023 have reduced to 3mg Pred without problems usng the great tapering calendar charts available on the site. Firmly...

Hi everyone.After PMA hit October 2023 have reduced to 3mg Pred without problems...

scoge

•2 days ago

9 Replies

insomnia

hi Ive just been diagnosed with GCA and on 40 mg of pred and I can’t sleep ! I’ve never had trouble sleeping in my life and find the fatigue crippling. Does...

hi Ive just been diagnosed with GCA and on 40 mg of pred and I can’t sleep ! I’v...

Missbisous

•2 days ago

30 Replies

How long after omeprazole to take Prednisolone?

I have tried to find out how long I should wait after taking omeprazole before taking the prednisolone so my stomach is protected, but nowhere can I find this...

I have tried to find out how long I should wait after taking omeprazole before t...

tiredbutoptimistic

•2 days ago

17 Replies

Reduced too low

Hi I've filled in my bio now so hope that helps with my question.I've been slowly tapering since Jan from 2mg and I got to 0.5mg 4 weeks ago. If im honest,...

Hi I've filled in my bio now so hope that helps with my question.I've been slowl...

Lovetobe

•2 days ago

9 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

my journey

DEXA and Leaky Bowels

how does overactivity impact on PMR & GCA?

Doing ok

RSV vaccination

Dreams

Flu and covid jabs

Fatigue

ESR reading

Newbie

Under new management, Hastings and Rye support group

Added to my Bio

So much help

Zoom or physical monthly meetings; great information and discussion!!

OK Several days in and many more questions

Gastritis, PPI’s and Methotrexate, a new chapter on the joys of PMR/GCA.

GCA flare or not.

GCA/pmr flare?

Newbie

esophageal candidiasis

To PMRGCA volunteers/members

Could this be my PMR changing to GCA?

A flare and cutting down

Tapering and vaccinations

Advice re flu jabs

PMR/GCA -Trouble with First Taper

Covid and Flu Injections

insomnia

How long after omeprazole to take Prednisolone?

Reduced too low

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