Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

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Help for a friend

Friend of mine been diagnosed with pmr. First contact with her doctor looked hopeful, although only prescribed 15 mg. She was then told to start reducing...

Friend of mine been diagnosed with pmr. First contact with her doctor looked hop...

Dorsetgirl17

•31 minutes ago

1 Reply

Back/pelvis/hip pain?

A month or 2 ago, I got a new dog, he's bigger than my previous dog and he pulls on the lead. And I got stressed adapting to the change. Somewhere soon after...

A month or 2 ago, I got a new dog, he's bigger than my previous dog and he pulls...

Curious101

•54 minutes ago

1 Reply

Nominated!

Done.

Tescohednesford

•1 hour ago

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on methotrexate

hi anyone know answer to this please? if a wheezing problem with lungs - which part on a full blood count would this show up if methotrexate was cause?

hi anyone know answer to this please? if a wheezing problem with lungs - whi...

booshywooshy

•2 hours ago

1 Reply

Incredible Pred Tale

OH's cousin is over from Virginia aged 77. He told me he had pmr January 2022 and was started on 60mg of pred. Gosh! Unbelievably high dose. Reduced fast...

OH's cousin is over from Virginia aged 77. He told me he had pmr January 2022 ...

diana1998

•3 hours ago

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GCA Questions

Hi Kind Friends, My GCA hit last October, about 6 months ago, and I was put on 60 mg. Prednisone. (I’ve also been on Actemra since November.) I’m doing pretty...

Hi Kind Friends, My GCA hit last October, about 6 months ago, and I was put on ...

Lenore58

•3 hours ago

3 Replies

Advice please re sickness bug and taking meds

Hi, I was violently sick yesterday evening and have only managed small sips of water since then. Have stomach pain too and not even thinking about eating...

Hi, I was violently sick yesterday evening and have only managed small sips of w...

Dance62

•3 hours ago

3 Replies

advise please re split dose

Can I have some Advise please . I’ve been on 4mg for the last month with another month to go before reducing again (hopefully) and after reading the advice...

Can I have some Advise please . I’ve been on 4mg for the last month with anothe...

MalloryMoss

•14 hours ago

3 Replies

PMRGCA UK charity nomination

Just saw this on Facebook in case anyone would like to nominate a favourite (!) charity for a £5000 draw...just search PMRGCA and a good one comes up!...

Just saw this on Facebook in case anyone would like to nominate a favourite (!) ...

Orange_2022

•16 hours ago

6 Replies

Arms in sleeves.

We talked about this problem at my knitting club last weekand all had the same problem with arms getting stuck in the sleeves of coats etc. It all came to a...

We talked about this problem at my knitting club last weekand all had the same p...

Booklist

•16 hours ago

11 Replies

ASPIN WOUNDER DRUG

I have taken aspirin dayly since I was about 40 I am now 86 in October if I forget to take it I quickly knew. Without it I felt quite lethargic But my...

I have taken aspirin dayly since I was about 40 I am now 86 in October if I forg...

Ronzy

•16 hours ago

2 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•17 hours ago

12 Replies

Please vote for us to win £5,000!

Hi everyone, there is a limited-time draw running for us to be in with a chance of winning £5,000. Please help us and vote for us by clicking on the link...

Hi everyone, there is a limited-time draw running for us to be in with a chance ...

Fran_Benson

Partner•19 hours ago

22 Replies

Gearoid

Have been told since January i might have GCA. Have been on Pred from 40ml now down to 10ml. I have had numerous tests all coming back negative. To date i...

Have been told since January i might have GCA. Have been on Pred from 40ml now ...

Rivocco

•19 hours ago

12 Replies

Slapped Cheek Disease

My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of Pred a day for PMR. Is it ok to be in contact with her. Thank you. Jenny

My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of...

Attic

•20 hours ago

6 Replies

Update

So started off with bloods showing CRP39 and ESR 68.Went onto 15mg of prednisalone and got immediate effect with tablets. I must say, i was not affected as...

So started off with bloods showing CRP39 and ESR 68.Went onto 15mg of prednisalo...

pastamaid

•20 hours ago

7 Replies

prednisone

It’s been years since I’ve been on prednisone and then I was on dosages of 40/30mg per day for brittle asthma but now it’s for pleural/pericardial effusion and...

It’s been years since I’ve been on prednisone and then I was on dosages of 40/30...

Numptybrain

•22 hours ago

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Dexa Scan and my Pain - Hello :)

Hello everyone :) I've just had a Dexa scan and the lady operating the machinery said at first glance it all looks good which was lovely to hear.. last time I...

Hello everyone :) I've just had a Dexa scan and the lady operating the machiner...

discoballs

•22 hours ago

12 Replies

Sugar substitute

Trying to follow anti inflammatory diet. Can I substitute sweetener for sugar occasionally

Trying to follow anti inflammatory diet. Can I substitute sweetener for sugar oc...

Shires123

•22 hours ago

5 Replies

PMR update, flare, cholesterol, pre diabetes, neck, DEXA etc

Follow up to previous post a few weeks back. Many thanks for helpful comments and support on previous post. Just to recap, when I posted last, I was...

Follow up to previous post a few weeks back. Many thanks for helpful comments a...

Gimme

•22 hours ago

8 Replies

Blagging a scarce Covid booster

Recent posts have asked questions about Covid booster eligibility for those taking prednisolone and being immuno-suppressed, potentially.I flippantly replied...

Recent posts have asked questions about Covid booster eligibility for those taki...

OldPenny

•22 hours ago

2 Replies

Short dose increase?

On 25mg mild symptums. Weekend activity coming up. Thinking of 5mg uplift for couple of days to get through. Any prroblem?

On 25mg mild symptums. Weekend activity coming up. Thinking of 5mg uplift for ...

tonyevans48

•23 hours ago

8 Replies

Egg allergy

Hi. I had pmr for 2 and half years but have been clear for 11 months now thanks to all on the forum and Dorset Lady for my slow taper programme. I think i...

Hi. I had pmr for 2 and half years but have been clear for 11 months now thanks...

Cosmos22Marigold

•1 day ago

2 Replies

Disappointed and worried

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went through my history of pain, I was initially diagnosed with PMR in sept last year...

Hi, Finally, i had my appointment with a Rheumatologist consultant. I went thr...

Cooper02

•2 days ago

38 Replies

The Flare That Keeps on Giving

I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoimmune thyroid disease (Grave’s) and Sjogren’s Disease. With a few ups and downs...

I was diagnosed with PMR in August, 2022. I also have multiple sclerosis, autoim...

Donna5658

•2 days ago

8 Replies

restless legs

Hi all, Another disturbed night - restless legs driving me insane. I get a horrible tingling sensation in my legs and cannot keep them still. I’m not...

Hi all, Another disturbed night - restless legs driving me insane. I get a horr...

artisam

•2 days ago

21 Replies

Good luck to our runners in the London Marathon today!

Wishing our runners a fabulous day today in the London Marathon raising valuable funds and awareness for PMR and GCA. A big thank you to all the sponsors...

Wishing our runners a fabulous day today in the London Marathon raising valuable...

Fran_Benson

Partner•2 days ago

5 Replies

Cramps

Has anyone had trouble with leg cramps, especially at night? I am getting bad cramp in both ankle joints & reaching up the shin especially on right leg. It is...

Has anyone had trouble with leg cramps, especially at night? I am getting bad cr...

Claremont2023

•2 days ago

36 Replies

Thoughts please on dissolving Prednisolone in water to drink instead of swallowing whole.

I only spotted this yesterday on the information in the Prednisolone tablets. In "Method of administration" section it says: "The tablets can be swallowed...

I only spotted this yesterday on the information in the Prednisolone tablets. In...

Positive__

•2 days ago

55 Replies

Thank you! Increase to 20mg Prednisolone.

Thank you so much for all the amazing help and advice you have all given me. 🙂 You are all wonderful! In my latest GP phone appointment because of the...

Thank you so much for all the amazing help and advice you have all given me. 🙂 ...

Positive__

•2 days ago

13 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Help for a friend

Back/pelvis/hip pain?

Nominated!

on methotrexate

Incredible Pred Tale

GCA Questions

Advice please re sickness bug and taking meds

advise please re split dose

PMRGCA UK charity nomination

Arms in sleeves.

ASPIN WOUNDER DRUG

Prednisolone and diabetes / high bp worried sick about all the side effects

Please vote for us to win £5,000!

Gearoid

Slapped Cheek Disease

Update

prednisone

Dexa Scan and my Pain - Hello :)

Sugar substitute

PMR update, flare, cholesterol, pre diabetes, neck, DEXA etc

Blagging a scarce Covid booster

Short dose increase?

Egg allergy

Disappointed and worried

The Flare That Keeps on Giving

restless legs

Good luck to our runners in the London Marathon today!

Cramps

Thoughts please on dissolving Prednisolone in water to drink instead of swallowing whole.

Thank you! Increase to 20mg Prednisolone.

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