Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

20,299 members • 38,028 posts

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Ozempic?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the weight gain from predizone?

Has anyone used, or discussed with thier doctor, taking Ozempic to help with the...

fairtree

•39 minutes ago

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1st Isle of Wight support group meeting 8th May

Hi everyone, if you're based on the Isle of Wight, our new support group there has set up its first meeting for 7.30pm on Weds 8th May at Newport...

Hi everyone, if you're based on the Isle of Wight, our new support group there h...

Fran_Benson

Partner•2 hours ago

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Steroid reduction

Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood test last week and was told normal . Don't know what normal is as the past few...

Two weeks ago I was told reduce your dosage from 4 to3 which I have done. Blood ...

kathyrob

•2 hours ago

4 Replies

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Severe mental reaction to prednisolone

As you can see if you read my profile I have spent almost the whole of the last 4 months struggling with a long list of frightening mood changes which have and...

As you can see if you read my profile I have spent almost the whole of the last ...

tinlid

•2 hours ago

5 Replies

Is this why MTX works for some and not for others?

Another interesting article from my inbox today! I'm sure you are all aware of the excitement about the gut microbiome and also that some people get a good...

Another interesting article from my inbox today! I'm sure you are all aware of t...

PMRpro

Ambassador•3 hours ago

1 Reply

Breathless

HelloHas anyone noticed more breathlessness when on higher dose Predisilone?

Teddy23

•5 hours ago

3 Replies

Here is a new idea: "The Patient Knows Best ..."

There are doctors, rheumatologists even, who have confirmed something we often suspect: The patient may well know what they need better than their doctor. And...

There are doctors, rheumatologists even, who have confirmed something we often ...

PMRpro

Ambassador•7 hours ago

7 Replies

throbbing ribs

Hi I have been completely off steroids since September 2023 for GCA. However I have developed throbbing joints especially in the evenings mainly in my ribs but...

Hi I have been completely off steroids since September 2023 for GCA. However I h...

Marley12b

•9 hours ago

3 Replies

Another pred cautionary tale

After yesterday's discussion, I heard from my friend last night that her friend who's had pmr for just over a year, had just come off her pred. She'd started...

After yesterday's discussion, I heard from my friend last night that her friend ...

diana1998

•10 hours ago

2 Replies

Tapering Guidelines

Currently on 25mg Pred. Where can the best 'official' tapering guidelines be found. Seeing GP in a weeks time and would like to be prepared.

Currently on 25mg Pred. Where can the best 'official' tapering guidelines be fou...

tonyevans48

•10 hours ago

6 Replies

Adrenal fatigue?

I have been suffering the most dreadful fatigue and breathlessness recently with gentle exercise such as walking. I can go to work OK, I'm a plumber and...

I have been suffering the most dreadful fatigue and breathlessness recently with...

Trainy

•21 hours ago

29 Replies

lower dose prednisone

Update Took a call from respiratory nurse an hour ago. My respiratory consultant and rheumatologist have had a discussion and decided to keep me on 10 mg of...

Update Took a call from respiratory nurse an hour ago. My respiratory consultan...

Numptybrain

•1 day ago

2 Replies

Stiffness/sore muscles

I have been off prednisolone for 60 weeks now, and on TCX for 4 years, but on 4 weekly jabs for 40 weeks. That fourth week before the jab I usually experience...

I have been off prednisolone for 60 weeks now, and on TCX for 4 years, but on 4 ...

LemonZest11

•1 day ago

15 Replies

chest infection

I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking pred since February). I have had a productive cough and what I believe is a...

I am currently tapering from 30mg to 25mg prednisolone for GCA. (been taking p...

kalgoorlie

•1 day ago

7 Replies

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

I arrived at my appointment for Covid vax this morning, and told the truth, the whole truth & nothing but the truth. I suffer fromPolymyalgia Rheumatica,...

I arrived at my appointment for Covid vax this morning, and told the truth, the...

Pixix

•1 day ago

66 Replies

Help for a friend

Friend of mine been diagnosed with pmr. First contact with her doctor looked hopeful, although only prescribed 15 mg. She was then told to start reducing...

Friend of mine been diagnosed with pmr. First contact with her doctor looked hop...

Dorsetgirl17

•1 day ago

8 Replies

Back/pelvis/hip pain?

A month or 2 ago, I got a new dog, he's bigger than my previous dog and he pulls on the lead. And I got stressed adapting to the change. Somewhere soon after...

A month or 2 ago, I got a new dog, he's bigger than my previous dog and he pulls...

Curious101

•1 day ago

10 Replies

Nominated!

Done.

Tescohednesford

•1 day ago

1 Reply

on methotrexate

hi anyone know answer to this please? if a wheezing problem with lungs - which part on a full blood count would this show up if methotrexate was cause?

hi anyone know answer to this please? if a wheezing problem with lungs - whi...

Hidden

•1 day ago

2 Replies

Incredible Pred Tale

OH's cousin is over from Virginia aged 77. He told me he had pmr January 2022 and was started on 60mg of pred. Gosh! Unbelievably high dose. Reduced fast...

OH's cousin is over from Virginia aged 77. He told me he had pmr January 2022 ...

diana1998

•1 day ago

10 Replies

GCA Questions

Hi Kind Friends, My GCA hit last October, about 6 months ago, and I was put on 60 mg. Prednisone. (I’ve also been on Actemra since November.) I’m doing pretty...

Hi Kind Friends, My GCA hit last October, about 6 months ago, and I was put on ...

Lenore58

•1 day ago

9 Replies

Advice please re sickness bug and taking meds

Hi, I was violently sick yesterday evening and have only managed small sips of water since then. Have stomach pain too and not even thinking about eating...

Hi, I was violently sick yesterday evening and have only managed small sips of w...

Dance62

•1 day ago

6 Replies

advise please re split dose

Can I have some Advise please . I’ve been on 4mg for the last month with another month to go before reducing again (hopefully) and after reading the advice...

Can I have some Advise please . I’ve been on 4mg for the last month with anothe...

MalloryMoss

•2 days ago

10 Replies

PMRGCA UK charity nomination

Just saw this on Facebook in case anyone would like to nominate a favourite (!) charity for a £5000 draw...just search PMRGCA and a good one comes up!...

Just saw this on Facebook in case anyone would like to nominate a favourite (!) ...

Orange_2022

•2 days ago

6 Replies

Arms in sleeves.

We talked about this problem at my knitting club last weekand all had the same problem with arms getting stuck in the sleeves of coats etc. It all came to a...

We talked about this problem at my knitting club last weekand all had the same p...

Booklist

•2 days ago

17 Replies

ASPIN WOUNDER DRUG

I have taken aspirin dayly since I was about 40 I am now 86 in October if I forget to take it I quickly knew. Without it I felt quite lethargic But my...

I have taken aspirin dayly since I was about 40 I am now 86 in October if I forg...

Ronzy

•2 days ago

9 Replies

Prednisolone and diabetes / high bp worried sick about all the side effects

hi everyone I was diagnosed with PMR in February this year And despite being a diabetic with high bp was put on Prednisolone and alendronic acid - I was...

hi everyone I was diagnosed with PMR in February this year And despite being a d...

Pol53

•2 days ago

36 Replies

Please vote for us to win £5,000!

Hi everyone, there is a limited-time draw running for us to be in with a chance of winning £5,000. Please help us and vote for us by clicking on the link...

Hi everyone, there is a limited-time draw running for us to be in with a chance ...

Fran_Benson

Partner•2 days ago

30 Replies

Gearoid

Have been told since January i might have GCA. Have been on Pred from 40ml now down to 10ml. I have had numerous tests all coming back negative. To date i...

Have been told since January i might have GCA. Have been on Pred from 40ml now ...

Rivocco

•2 days ago

12 Replies

Slapped Cheek Disease

My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of Pred a day for PMR. Is it ok to be in contact with her. Thank you. Jenny

My nine year old Grandaughter has Slapped Cheek Disease. I am on my final 3mg of...

Attic

•2 days ago

8 Replies

Write a post or ask a question

Posts - PMRGCAuk | HealthUnlocked

PMRGCAuk

Ozempic?

1st Isle of Wight support group meeting 8th May

Steroid reduction

Severe mental reaction to prednisolone

Is this why MTX works for some and not for others?

Breathless

Here is a new idea: "The Patient Knows Best ..."

throbbing ribs

Another pred cautionary tale

Tapering Guidelines

Adrenal fatigue?

lower dose prednisone

Stiffness/sore muscles

chest infection

Covid vaccination in England for 75 & over & those on 20mg steroids at this moment, & 20mg for over one month

Help for a friend

Back/pelvis/hip pain?

Nominated!

on methotrexate

Incredible Pred Tale

GCA Questions

Advice please re sickness bug and taking meds

advise please re split dose

PMRGCA UK charity nomination

Arms in sleeves.

ASPIN WOUNDER DRUG

Prednisolone and diabetes / high bp worried sick about all the side effects

Please vote for us to win £5,000!

Gearoid

Slapped Cheek Disease

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